Hi my name is Janice, Lexey is like my niece.

In July 2020 baby Kash was born with his bright blue eyes, contagious smile, bilateral cleft palette, a heart defect that was later determined to be a symptom of CHARGE Syndrome. Which is a rare genetic disorder with multi system defects.

Baby Kash was so brave and so were mom Lexey and dad Scott they all fought so hard for Kash’s little life. Kash was so happy through his entire short little life always smiling with sparkling eyes looking at his Mama with so much love even though he was deaf in 1 ear and partial hearing in the other he always heard her❤️

Due to Covid Lexey spent a lot of time caring for him at CHLA by herself and they couldn’t have visitors. Kash was in the hospital the majority of the last 11 months and Lexey has been unable to work while caring for him. He has a trach, feeding tubes has had a couple surgeries, intubated on and off of oxygen coded for 30 minutes at only a few weeks old then again recently causing severe brain damage so much for such a small body and needing 24/7 care. Then Jesus decided Kash’s little body had had enough and took him home

And even though Lexey is Supermom she doesn’t have the money to cremate her baby or celebrate his life.

Scott was a new hair stylist when COVID hit with another child he is also trying to support. I’ll be honest I don’t know Scott but Lexey has grown into the most amazing woman I have the pleasure of knowing she is only in her early 20s and she has handled this unexpected pregnancy and then her first child being so sick with more grace and love and pure joy for her baby than I have ever seen even in moms of healthy babies. I have never lost a child other than miscarriage so I will not disrespect those who have by saying I understand. But if Lexey grieves as hard as she loves she will desperately need your prayers. So please

Please pray for every one in this family but especially Lexey and Scott.

Please if you can financially support them anything will help!

And please share.