Main fundraiser photo

Please donate to help Baby Jujhar and His Family

Donation protected
Dear friends and family,

Bindi and Ramneek were so excited to invite Jujhar to this world and join his big brother Zorawar. After a month back and forth between home and the NICU, they were finally able to bring premature Jujhar home to spend time with his family. The time with family was short lived though, and in August, Jujhar began having ongoing seizures. Jujhar was in the ICU again for over a month, while doctors tried their best to stop his continual seizures. Finally, in September, Jujhar was diagnosed with Menkes Syndrome, an incredibly rare genetic disorder that affects only 0.001% of newborn babies. Menkes Syndrome is a terminal disease, and without treatment, children die before they are 3 years old.

Jujhar has been accepted into a clinical experimental trial that may extend his life longer, allowing him and his family to spend more time with him and gives him the chance to experience more of life on this earth. Between traveling across the US for the clinical trials and taking care of their three year old, the Singh Family could use some support. We’re fundraising so one parent can stay home to care with Jujhar while another parent works, and the family can afford to travel to the clinical trial.

We thank you for being part of the Singh Family’s journey and appreciate any support.
Donate

Donations 

    Donate

    Co-organizers (2)

    Jasmine Dhaliwal
    Organizer
    Overland Park, KS
    Satvinder Singh
    Beneficiary
    Kamardip Singh
    Co-organizer

    Your easy, powerful, and trusted home for help

    • Easy

      Donate quickly and easily

    • Powerful

      Send help right to the people and causes you care about

    • Trusted

      Your donation is protected by the GoFundMe Giving Guarantee