Hello Everyone,

For the past 2 years we have been fighting for Jayden to overcome his obstacles. He was recently diagnosed with Kabuki Syndrome which he's had all his life but we finally put a name to his condition. Jayden has had 2 open heart surgeries, a liver surgery (kasai procedure) removed his gallbladder, and Left kidney surgery. Jayden was on a feeding tube and on small doses of oxygen practically his whole life. Recently Jayden has been admitted to the hospital in October and was diagnosed with the Flu and an infection we can never seem to figure out. He was then coming home and we found out he has NEC (another condition) and a blood infection. He was intubated twice and the goal was to get him back to how he was when he was home. After three months of fighting, we were supposed to discuss Jayden coming home once again and that's when everything changed. Jayden's lungs were collapsing, causing him to breathe hard and made things bad for his Right kidney. Jayden has been on the bypass machine for some time now and we were told he cannot come off the machine. His own carbon monoxide isn't releasing on its own. To think that after 2 years of surgeries and infections, this was the most heart breaking. We knew he would go through more pain than he could endure so we decided to let GOD do what he's been wanting to do. We believe GOD called for his Angel and we had to say our Goodbyes. The money we want to raise would help us for any and all expenses and we would also donate to the hospital because without them we probably would have never gotten one minute with our Baby Jayden! We are blessed to have been loved by him, and blessed to say we are stronger because of him! We love you Baby Jayden !