The Heart of Our Family

At just 7 months old, baby Jannah, should be reaching for her favorite toys, rolling over, and preparing to take on the world. She has the brightest smile and a spirit that lights up every room. However, our world changed forever when she was recently diagnosed with Spinal Muscular Atrophy (SMA).

SMA is a rare genetic disease that attacks the motor neurons in the spine, leading to progressive muscle wasting. For a baby as young as Jannah, this means she is losing the strength to move, swallow, and eventually, to breathe.

The Miracle Within Reach

The good news is that we live in an era of medical miracles. There is a transformative gene therapy called Vesemnogene Lantuparvovec. Unlike traditional treatments that require lifelong injections, this is a one-time treatment that addresses the genetic root cause of SMA.

It is, quite literally, a "one-and-done" chance for Jannah to live a long, healthy life.

The Hurdle We Face

While science has provided a cure, the barrier to accessing it is monumental. The cost of this specialized treatment and the associated medical care is staggering. We are urgently raising $100,000 to cover the costs of the therapy and the intensive clinical support Jannah needs to receive it safely.

Time is our biggest enemy. Because SMA is progressive, the sooner baby Jannah receives this treatment, the more motor function we can save. Every day counts.

How You Can Help

We know that $100,000 is a mountain, but we believe that with your help, we can climb it. Your donation, no matter the size, goes directly towards the cost of the gene therapy treatment.

If you are unable to donate, please consider sharing this link with your

friends, family, and community. A simple share could be the reason baby Jannah gets her miracle.

Thank you for your kindness, your prayers, and for standing with Jannah in the fight of her life.