Dear well wishers,

I am Vinay, childhood friend of Janish's father Naveen. I am organizing this fundraise to help my friend to save his son Janish from Spinal Muscular Atrophy Type 1 (SMA1) genetic disease.

Janish is 10 months old baby and for the last 4+ months he has been on respiration life support(Bipap). There is  a very short time period with Naveen to save his son. We need your help to save his child.

SMA type1 is a terrible disease, a rarest of rare genetic disorder that affects 1 in 10000 kids worldwide.  Baby Janish is missing one very important gene that produces key protein in the body. That protein keeps his nerve cells active. Without this protein, Janish cannot survive.

There is no treatment available in India to cure Janish from this disease. However there is some hope. US has the treatment to this disease. ZOLGENSMA (Gene Therapy) is the medicine/treatment. Unfortunately Naveen and his family cannot afford this treatment on their own. This treatment costs around $2.1 Millions (~16,00,00,000 INR). This medicine has be to imported from USA to treat and save Janish's life.

Naveen, his friends and and family are requesting , pleading you all to help save Janish. Your contributions are remembered throughout his life.

Short video from the parents of Baby Janish and treating doctor 

Please help us by spreading the word to all the kind hearts to support this child. All our social media links are available here.  
Janish fights SMA Type1
Save Janish 
Janish and his life