Donation protected
Izabella Grace was only 24 weeks in gestational when we went for our appointment it all started with a profile picture and we got the devastating news no parent expects to hear especially after being told a month earlier everything was normal. We received the news Bella needed to be seen immediately by a high-risk doctor as tears came down my face of fear I had to explain to her daddy when I went to meet him. We then went a week later to the high risk doctor to be told there was something wrong that she had Heterotaxy Syndrome (Heterotaxy syndrome is a condition in which the internal organs are abnormally arranged in the chest and abdomen).
The following week we went to a cardiologist who diagnosed her with left ventricle heart syndrome (Hypoplastic left heart syndrome- Hypoplastic left heart syndrome (HLHS) is an uncommon, complex congenital (present at birth) defect in which several structures in the heart’s left side form incorrectly. It is one of several “single ventricle defect” conditions where only one of the heart’s two ventricles can pump effectively. Babies with HLHS cannot properly pump oxygen-rich blood to the body, and therefore cannot live without intervention.).
Here we are today with weekly appointments running to St. Louis and the journey to our little heart warrior who will join us in June. She will have to have three open heart surgeries, two within the first 9 months of life. She then will also have test run on her stomach, which is on the opposite side than it should be. Her main journey will be her heart warrior journey. She will be born in St. Louis and remain in the cardiac ICU unit for at least a couple weeks after birth while a more permanent plan can be formulated.
Sierra will be staying with baby Izabella in St. Louis after childbirth, leaving her husband Nick at home to work and take care of their 2yr old son, Brayden who suffers from Eosinophilic Esophagitis (a chronic allergic inflammatory disease of the esophagus that is mainly triggered by food proteins. Eliminating the six foods commonly associated with food allergies (milk, wheat, soy, egg, nuts, and fish) from the diet is an effective treatment for the majority of patients with EoE.)
We appreciate any and all donations, and of course lots of prayers as this journey of unknowns unfolds. With only 1 parent being able to work at this time and mounting medical bills, we are eternally grateful for your consideration of help.
The following week we went to a cardiologist who diagnosed her with left ventricle heart syndrome (Hypoplastic left heart syndrome- Hypoplastic left heart syndrome (HLHS) is an uncommon, complex congenital (present at birth) defect in which several structures in the heart’s left side form incorrectly. It is one of several “single ventricle defect” conditions where only one of the heart’s two ventricles can pump effectively. Babies with HLHS cannot properly pump oxygen-rich blood to the body, and therefore cannot live without intervention.).
Here we are today with weekly appointments running to St. Louis and the journey to our little heart warrior who will join us in June. She will have to have three open heart surgeries, two within the first 9 months of life. She then will also have test run on her stomach, which is on the opposite side than it should be. Her main journey will be her heart warrior journey. She will be born in St. Louis and remain in the cardiac ICU unit for at least a couple weeks after birth while a more permanent plan can be formulated.
Sierra will be staying with baby Izabella in St. Louis after childbirth, leaving her husband Nick at home to work and take care of their 2yr old son, Brayden who suffers from Eosinophilic Esophagitis (a chronic allergic inflammatory disease of the esophagus that is mainly triggered by food proteins. Eliminating the six foods commonly associated with food allergies (milk, wheat, soy, egg, nuts, and fish) from the diet is an effective treatment for the majority of patients with EoE.)
We appreciate any and all donations, and of course lots of prayers as this journey of unknowns unfolds. With only 1 parent being able to work at this time and mounting medical bills, we are eternally grateful for your consideration of help.
Organizer and beneficiary
Kathy Sutton Bacon
Organizer
Glenarm, IL
Nicolas Embree
Beneficiary