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Baby Havyn has been diagnosed with a rare genetic disorder: ALG1-CDG. There are very little known cases of this gene mutation at the moment. Before Havyn, there has only been 39 recorded cases in the world of this specific gene mutation and very little of them are in the US.
I am asking for your generosity and prayers to help ease the burden of medical expenses and help Havyn's parents who have temporarily taken time away from work to attend to Havyn as she has been in hospital for several weeks now (plus multiple times over the last couple of months). This is a long battle for the family and I know anything you can give would be greatly appreciated and used wisely.
From Havyn's Mom: "As you can imagine, we don’t have the answers we want or need right now. But we will reach out to specialist that know things about CDG and will work with the handful of families dealing with this disorder to bring more awareness. We know that God has a plan for us and our girl. Please just continue to pray for Havyn and our family. ♥️ thank you guys!"
If you would like to send donations via the CashApp please do so here: $ryanhoward350 or $brigtay
Organizer and beneficiary
Brigette Howard
Beneficiary

