Baby Greyson Detoro

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45 donors
0% complete

$1,885 raised of $9K

Baby Greyson Detoro

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Greyson James Detoro was born to Emily Christine Detoro on June 6th, 2016 in Vallejo, California. He was diagnosed with a very rare genetic disease called Zellweger Syndrome (a disease that impairs the proper functioning of the body's peroxisomes, a cellular structure that normally breaks down fatty acids and other metabolic waste products), which only affects 1 in 50,000 infants. There sadly is no standing cure for this disease as well as a standard way to treat it. Greyson, a beautiful, loving, smiling boy who brought a lot of love to everyone he met, was put into God's hands on December 2nd, 2016, and passed away in his mother's friend's arms at 3:45pm early that night with his mother right by his side. This fund is to celebrate Grayson's life, and the six months of happiness he gave his family. It is in times like these where we need to come together as a community to help Greyson's mother with the financial struggle that will come with this loss. The money will be put towards a proper funeral to celebrate Greyson, as well as any other expenses that the mother needs to make in order to get through this tough time in her life. Any amount of money will help out. Thank you.

Also, "United Leukodystrophy Foundation" is a non-profit organization that helps families of patients like the Detoro's with diseases such as Zellweger Syndrome and funds medical research. If you'd like to help other families who have similar stories such as Greyson, please call [phone redacted], or visit them online at ulf.org.


Organizer and beneficiary

Alexis Taylor Harris
Organizer
Middlebury, IN
Em De
Beneficiary

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