When my mom was 30 weeks pregnant she was having a routine ultrasound done when they saw that my left kidney was twice the size of me right now, they would later find what they thought were cysts on my kidney in a few weeks. When my mom was 37 weeks they had to induce the pregnancy. And BEAUTIFUL Genevieve Avery Robideau was brought into this world on 1/6/17. Everything seemed fine until the next day when I got an ultrasound to check my kidney again. We met with a Urologist from Phoenix Children's Hospital and he had never seen a kidney like mine .3 weeks later we had an appointment where they did a full body CT scan.
That's when they found the tumor. My entire left kidney was a giant tumor.It was 4 times the size of a normal kidney and I was scheduled for surgery the following week.During my surgery they had to remove my left kidney,and the tumor had ruptured and I was given a blood transfusion.The doctors originally thought that I had a Whilms tumor, which is a common Childhood kidney cancer, but we later learned it was an extremely rare cancer called Mesoblastic Nephroma. Only 10 cases are diagnosed a year globally and sweet Ginny was one of the unlucky ones.I am the 2nd case that Phoenix Children's hospital has seen in the past 30 years.
I started Chemo at just 1 month old and I have a Broviac line, which is a tube that sticks out of my chest and is a direct line to my heart.It allows my mom and dad and the doctors to give me my medications without having to poke me constantly!I am doing amazing so far .But I have had 3 hospital stays and 2 blood transfusions since my initial surgery .And still receiving Chemo.I am now 5 months old and very strong. I am a little fighter.!
Due to the the financial hardship and the overwhelming medical expenses.Between travel ,ambulance rides,medication and hospital stays.And we don't know what the future holds. My Mom and Dad can't afford to take anytime off. They have already used all there vacation time and are trying to rotate to the best of there availability.My grandma and grandpa babysit me.I am so blessed to have them !We would deeply appreciate any kind of help at this most difficult time.
LOVE FROM ALL OF US,
- Kim and Brady Thomas
- Timothy & Shelly Goldrick
- Mike Clarke
- Alexis Fynaut
- jim looby
Organizer and beneficiary
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