My dear friends Janie and Nelson Ballew Brought into the world a sweet baby boy Mr Everett Landry on 4/10/19. It was known Everett would have some kidney issues and they were prepared to tackle those with the pediatric team at Ochsners New Orleans.
However, after arrival to Ochsners and further testing they received some devastating news.
Below is the update they so graciously shared with family and friends to keep us in the loop.
“We received some devastating news yesterday regarding Everett. He has an underlying heart condition called Hypertrophic Cardiomyopathy. This whole time we were so focused on his kidneys and it was his heart that has the problem. There is no cure for this. It’s genetic. He’s too small to have a heart transplant. They believe it’s Noonan syndrome but are running a genetic panel to find out more. We have no words to describe the pain we’re going through. Our sweet baby boy won’t be coming home. Devastated doesn’t even begin to describe what we’re feeling. This is the hardest thing I’ve ever faced in my life. I needed y’all to know what was going on so you can pray. That’s all we can do now. I don’t know how much time we have left with him. I don’t know if God will grant us a miracle. I do know that He is the only one who can change this situation if it’s His will. All I can do is trust Him and leave this in His hands.
Please pray for strength for Nelson and I. Please pray for Sloan, as she’s so young and won’t fully understand or grasp the situation. Please pray if it’s God’s will to grant Everett a miracle. PRAY. That’s all we ask of you. We are trying so hard to stay strong for Sloan. She’s such a blessing to us. She is a beautiful, healthy girl that God gave to us and we will not take that for granted. Love to all.
#PrayForEverettLandry”
Janie and Nelson are both doing everything they can to be with their son in New Orleans during this difficult time but as you can imagine that means, missing work, missing pay and every day bills needing attention. Not to mention the medical bills that they are acquiring trying to do everything possible for their son. We are wanting to help lift some of the financial burden so that they can continue to put their focus on their family. If you can and want to donate- it would be greatly appreciated.
We ask if you will please take a minute after reading this to say a prayer for them. We are all praying for a miracle.
However, after arrival to Ochsners and further testing they received some devastating news.
Below is the update they so graciously shared with family and friends to keep us in the loop.
“We received some devastating news yesterday regarding Everett. He has an underlying heart condition called Hypertrophic Cardiomyopathy. This whole time we were so focused on his kidneys and it was his heart that has the problem. There is no cure for this. It’s genetic. He’s too small to have a heart transplant. They believe it’s Noonan syndrome but are running a genetic panel to find out more. We have no words to describe the pain we’re going through. Our sweet baby boy won’t be coming home. Devastated doesn’t even begin to describe what we’re feeling. This is the hardest thing I’ve ever faced in my life. I needed y’all to know what was going on so you can pray. That’s all we can do now. I don’t know how much time we have left with him. I don’t know if God will grant us a miracle. I do know that He is the only one who can change this situation if it’s His will. All I can do is trust Him and leave this in His hands.
Please pray for strength for Nelson and I. Please pray for Sloan, as she’s so young and won’t fully understand or grasp the situation. Please pray if it’s God’s will to grant Everett a miracle. PRAY. That’s all we ask of you. We are trying so hard to stay strong for Sloan. She’s such a blessing to us. She is a beautiful, healthy girl that God gave to us and we will not take that for granted. Love to all.
#PrayForEverettLandry”
Janie and Nelson are both doing everything they can to be with their son in New Orleans during this difficult time but as you can imagine that means, missing work, missing pay and every day bills needing attention. Not to mention the medical bills that they are acquiring trying to do everything possible for their son. We are wanting to help lift some of the financial burden so that they can continue to put their focus on their family. If you can and want to donate- it would be greatly appreciated.
We ask if you will please take a minute after reading this to say a prayer for them. We are all praying for a miracle.
Co-organizers3
Janie Ballew
Beneficiary
Jennifer Cumberland Gullett
Co-organizer
Alicia Moore
Co-organizer