Nina Khangura is organizing this fundraiser on behalf of Nicole Nelson.
Daniel was born Dec 29, 2016 with complex medical needs. After a high risk pregnancy and 8 weeks on bedrest, Daniel was expected to be a healthy little boy. It wasnt until he was 24 hours old that we realized that he was very sick. Daniel spent 14 days in NICU to receive diagnostic testing, stabilize his blood sugar and temperature, and learn to feed. He has had 2 additional admissions on the Pediatric Unit in Regina, and a planned admission in Edmonton soon. Daniel was born with a life threatening Cortisol deficiency, hypothyroidism, a congenital heart defect (large hole between the ventricles, and a patent foramen ovale) that requires open heart surgery (June 6), dysmorphic features (wide lips, high palate, lip and tongue ties, low-set ears, and a webbed toe), and has developed a very large parotid hemangioma that is resistent to treatment, and now has pulmonary hypertension. He is mostly fed with a ng tube because he doesnt have enough energy to eat before his heart is fixed. Because Regina doesnt have the specialists that Daniel requires, he must travel for care. His Cardiologist, Endocrinologist, and Geneticist are in Saskatoon. His Cardiac Surgeon and Pediatric Dermatologist are in Edmonton. And he will also be travelling to Calgary Children's Hospital to attend the Vascular Birthmark Clinic. Some of Daniel's medical needs will resolve in time, but others will be life long. Traveling to see his doctors will continue to be his reality until he is an adult. With the right treatments in place, we hope that Daniel will be able to live an incredible life. I fully believe that with the help of everyone who know this little man or who is just simply touched by this story, we can help and try to ease some of the stress for his mommy and daddy...... Anything helps and I know how grateful they will be to see how many people truely love and care for them....... Thank -you so much from the bottom of my heart,once we get a desired amount i have made Nicole Nelson the benificiary so that she will be able to handle the funds as she is the mother of Daniel as you all know LOL... Thanks again all:)