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Baby B’s Heart

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On June 3rd 2019 at a 20 week sonogram my cousin Kiel, and her Husband Dan learned that their little one due in October has a heart condition called Hypoplastic Right Heart Syndrome.  That means the right side structure of her heart is underdeveloped or not formed.  At the news of this my Kiel and Dan, were devastated and shocked, it was very hard to wrap their head around the news they were just given.

The baby isn’t due till October 24th 2019, but  could be born anytime after September 10th at Strong Memorial Hospital, in Rochester New York, as they have a NICU Cardiac Team.

Kiel and her family live in Holland New York , that is an hour and a half away from Strong Memorial Hospital.  Kiel is also the mother of a sweet little 2 year old girl.  Kiel may be in Rochester, away from her other daughter for up to 6 weeks.

At birth, the baby will have to have an IV of Prostaglandin put into her belly button.  This will keep the ductus arteriosus open and keep her alive before her first surgery.  Her first surgery will be an open heart modified BT Shunt, that will be done in her first week of life.  Her second surgery will be when she is around 6 months old and that will be an open heart Glenn Procedure.  Her third surgery is an open heart Fontan, and that will be done when she is 4 or 5 years old.

Kiel is going to the OB every 2 weeks, then to Buffalo Children’s Hospital every week for Fetal heartbeat monitoring, she sees a pediatric cardiologist once a month, and has at least two appointments at Strong Memorial in Rochester.  This travel is in conjunction with added daycare cost for her 2 year old and her husbands missed time from work, the cost is mounting up even with health insurance.

So with Kiel and Dan’s permission, and with prayer and the determination to give their baby and their family the best life possible, I am setting up this Go Fund Me page.

Sincerely,
Kourtney K. Owen
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    Organizer and beneficiary

    Kourtney Owen
    Organizer
    North Tonawanda, NY
    Kiel Bogucki
    Beneficiary

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