Amber was then referred to a maternal-fetal medicine specialist by her OBGYN. Amber was not too concerned and did not think too much about her appointment with the specialist because this wasn’t her first pregnancy. Her OB had referred her in the past with her previous pregnancies, as he does with all his patients that are expecting. The appointment was to perform ultrasounds, confirm the baby’s growth and also to confirm the baby’s sex, if the baby felt like sharing that day!
Amber was always excited and enjoyed those types of appointments during her pregnancies. Not only do you receive the baby’s first pictures, confirm the sex of the babies, but you begin to learn their personalities while observing the babies on each ultrasound. Amber was even more intrigued and fascinated because she was carrying twins, and she knew that this was going to be a completely different experience than carrying just one baby. Even though she was dismayed, Amber knew that being blessed with baby boy twins was a miracle and that this pregnancy was going to be an amazing learning experience in every aspect.
Amber eagerly excited for her ultrasound appointment, arrived early only to receive disturbing and awful news about her baby boy twins. Amber learned that day that the type of twins she was pregnant with, meant that her pregnancy came with a lot of complications and immediately she was considered a high risk pregnancy.
Being pregnant with Mono Di Twins, my baby boy twins were diagnosed with Twin-to-Twin Transfusion syndrome. (TTTS) Twin-to-twin transfusion syndrome is an imbalance in the blood flow between identical twins who share one placenta known as monochorionic twins but have separate amniotic sacs. Twins who share a placenta but have separate amniotic sacs are known as monochorionic-diamniotic twins. When the placenta is shared, blood vessels within it connect the twins' blood supply, allowing blood to flow between them. If the blood flow becomes unequal, the twins will grow at different rates with the smaller (donor) twin pumping blood to the larger (recipient) twin. As a result of their differing blood supplies, each twin faces a set of challenges that require expert and experienced care. The donor twin gets less blood than its sibling, causing it to become anemic (lacking in red blood cells) and produce less urine, the main ingredient of amniotic fluid. The fluid can continue to decrease (oligohydramnios) to the point of disappearing completely, causing the amniotic sac to cling to the fetus. The fetus may also appear to adhere to the wall of the womb, prompting many to refer to this twin as the "stuck twin."
Despite a very long hospitalization for Amber keeping her pregnant with her twins boys, the worst possible outcome occurred. Amber spent weeks in the hospital monitoring her twin baby boys daily. Away from her family she spent day after day, allowing her twins to grow. While the twins grew in size and gestational age so did everyone's hopes for these babies to live and do well! However, the unthinkable happened on 10/30, the day after Amber's birthday, Amber suddenly felt different and asked for the nurse and doctor. The doctors confirmed the horrible news that baby B had passed away inside Amber's pregnant belly, and the need to deliver baby A immediately was determined to be best for the surviving twin. Both babies were born; baby A awaiting the nursery ICU team and baby B to nurses and then to Amber. The sadness for baby B was enormous. Then within hours baby A had started to lose his fight for life as well. Unfortunately, despite all Ambers efforts, doctors and nurses best care, and baby A's struggling to fight, he also passed away within less than 8 hours of birth. The shock and loss, breaking Amber's and her families’ hearts all over again. The unbearable and heartbreaking grief are so much for one family to experience. Let us try to help them with burial expenses to bury their amazing baby boys who both left their families and this world too soon.....
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