Avery was born on 10/28/2020. She was born with a cleft palate and mildly enlarged heart and spent little over 3 weeks in the NICU. During her time in the NICU, she was diagnosed with an extremely rare genetic disorder called Pallister-Killian Syndrome (PKS). PKS is a rare chromosome abnormality, so rare that there are approximately 200 reported cases of the syndrome in the entire world.
PKS is a mosaic syndrome which means that no two children are the same with this diagnosis, This leaves so much uncertainty for what Avery's future looks like. The characteristics that she will have are unpredictable and only time will tell.
Some characteristics can include:
Low muscle tone
Intellectual disabilities
Developmental and Speech Delays
Heart Defects
Hearing and Vision problems
Distinctive Facial features including Cleft Palate
Avery had a minor surgery on November 18th to have a feeding tube installed. She came home from the hospital on November 20th. Mom and Dad are diligently working with her on bottle feeding but this is difficult with her cleft palate.
She will need to have surgery on her palate when her Doctor determine she's ready.
Brian and Elicia aren't the type to ask for help. They are usually the ones blessing others in need. We're creating this GoFundMe on their behalf hoping to help ease some of the burden by coming together to support the Wolsey family during this time. The medical bills are beginning to stack up and this is just the start of their journey with PKS. If you can not donate that's ok too, we just ask you please keep this precious family in your prayers. 

All the fundraising money now will be going to Avery's medical bills and therapies.


You can ready more about PKS here: https://medlineplus.gov/genetics/condition/pallister-killian-mosaic-syndrome/#frequency