Baby Avery Heart Fund
Donation protected
Avery’s Story
He was born August 31 - 2018 with a very RARE heart condition. Avery was diagnosed with Scimitar Syndrome, TAPVR, hypoplasia of right lung, hypo-plasma of right pulmonary artery, AND right ventricular enlargement; (watch shot vied below for more on this condition if you wish). We do NOT have health insurance and I had to give up my job to completely focus on getting Avery properly treated. He is in desperate need of a surgery on his heart AS SOON AS POSSIBLE, or odds are we WILL loose him! He has stopped putting on weight, we have a doctor willing to do the surgery, however, not only the day to day expenses are enormous, we cannot even put a number on all the associated medical and Rx have already depleted our savings, and we are trusting in The Lord good people like you will help us save our Avery!
As more information is provided, this page will continue to be updated. With the donations collected on this page, I will be able to stick with Avery, and with your help and a significant burden can be lifted off our shoulders. This page is meant to show support for Avery and his family to unite together to show them that they are not alone in this battle. Every contribution is a blessing, so anything you can provide is a wonderful gift.
Understanding TAPVR, short animated explanation ;A short video and of Avery & our family:
*** NOTE: ALL GIFTS for Avery will be used strictly for Travel Expenses to & from doctors or hospitals, cost of medical expenses & Formula for Avery. ALL the gifts received here go directly in to an account exclusively reserved for Avery & will ONLY be used for these related expenses. ***
When Avery was born we were NOT even sure if he was going to make it. But, Avery came in to this cruel world as a strong fighter.
He ended up in the NICU to run a whole battery of test. We spent 5 days in the hospital and was able to come home.
At that point there really wasn’t much hope given to us for him, but each day Avery has fought and been so strong.
We were giving news that we were NOT preparing for - even though Avery appeared to be doing well after two weeks, we were told that his heart would start to fail, just get worse over time, and there was NOTHING they could do for him.
I couldn’t sit back and watch my baby suffer! I would find someone and some how I just knew I would find him help.
I started calling all the hospitals that could help a baby with scimitar syndrome and TAPVR because there are not that many hospitals that can help.
When I was 28 weeks pregnant Winston-Salem had done a echocardiogram on him trying to figure out what was going on because they thought he had a mass in his lungs. So I called Winston-Salem and they were able to get Avery in to see the cardiologist there.
So in the middle of a Hurricane, we drove to see the cardiologist to spent hours talking with them while they explained even more about his heart conditions, and made it clearer at to what we were facing. We later came back and have made numerous trips back and forth to Winston-Salem. Which is, and continues to be very, VERY expensive.
Our last visit about 4 weeks go we were told they are unable to do his open heart surgery there. So once again it was back to trying to save our baby as we look for a hospital. I contact four hospitals where Cincinnati Ohio called me back and got me appointment right away. So off we went praying they would be able to help.
We got there and after lots of test were run, once again the Doctors and staff were great and reassuring to us that Avery was going to be OK. They felt that they could do the surgery - we just needed to go in front of the hospital board first. So, once agin we came back home to NC where we waited to here from them.
Finally, the phone call came in and it was great news they could do the open heart. But first they need to put coils in his heart so it was set up for January 9th. We cried for joy and so excited.
We had an appointment to go back to Cincinnati on December 3rd when we got the devastating news that our insurance WOULD NOT cover the procedures Avery needed because they were considered to be “OUT-OF-NETWORK!”
As if it’s not hard enough, when Avery was born I resigned from my job, (which was our main source of income) to be able to take care of him.
However, because of one of the wonderful Doctors at the Cincinnati Hospital, we were able to get Avery in to be treated there. We are so thankful!
Each and every day is a new journey with Avery. We still do NOT know the whole of what we will be faced with because of Averys many condition(s). We DO KNOW we must continue to travel to as many different specialists as it takes! Therefore we must continue to go wherever we must to get Avery the treatments, surgeries, and whatever is needed to save out little Avery!
Goes without saying, that we LOVE our Avery, and will do what every it takes to save our Son!
Thank you for considering to helping us, we are forever grateful - and God Bless to you all!
He was born August 31 - 2018 with a very RARE heart condition. Avery was diagnosed with Scimitar Syndrome, TAPVR, hypoplasia of right lung, hypo-plasma of right pulmonary artery, AND right ventricular enlargement; (watch shot vied below for more on this condition if you wish). We do NOT have health insurance and I had to give up my job to completely focus on getting Avery properly treated. He is in desperate need of a surgery on his heart AS SOON AS POSSIBLE, or odds are we WILL loose him! He has stopped putting on weight, we have a doctor willing to do the surgery, however, not only the day to day expenses are enormous, we cannot even put a number on all the associated medical and Rx have already depleted our savings, and we are trusting in The Lord good people like you will help us save our Avery!
As more information is provided, this page will continue to be updated. With the donations collected on this page, I will be able to stick with Avery, and with your help and a significant burden can be lifted off our shoulders. This page is meant to show support for Avery and his family to unite together to show them that they are not alone in this battle. Every contribution is a blessing, so anything you can provide is a wonderful gift.
Understanding TAPVR, short animated explanation ;A short video and of Avery & our family:
*** NOTE: ALL GIFTS for Avery will be used strictly for Travel Expenses to & from doctors or hospitals, cost of medical expenses & Formula for Avery. ALL the gifts received here go directly in to an account exclusively reserved for Avery & will ONLY be used for these related expenses. ***When Avery was born we were NOT even sure if he was going to make it. But, Avery came in to this cruel world as a strong fighter. He ended up in the NICU to run a whole battery of test. We spent 5 days in the hospital and was able to come home. At that point there really wasn’t much hope given to us for him, but each day Avery has fought and been so strong.
We were giving news that we were NOT preparing for - even though Avery appeared to be doing well after two weeks, we were told that his heart would start to fail, just get worse over time, and there was NOTHING they could do for him.
I couldn’t sit back and watch my baby suffer! I would find someone and some how I just knew I would find him help. I started calling all the hospitals that could help a baby with scimitar syndrome and TAPVR because there are not that many hospitals that can help.
When I was 28 weeks pregnant Winston-Salem had done a echocardiogram on him trying to figure out what was going on because they thought he had a mass in his lungs. So I called Winston-Salem and they were able to get Avery in to see the cardiologist there.
So in the middle of a Hurricane, we drove to see the cardiologist to spent hours talking with them while they explained even more about his heart conditions, and made it clearer at to what we were facing. We later came back and have made numerous trips back and forth to Winston-Salem. Which is, and continues to be very, VERY expensive.
Our last visit about 4 weeks go we were told they are unable to do his open heart surgery there. So once again it was back to trying to save our baby as we look for a hospital. I contact four hospitals where Cincinnati Ohio called me back and got me appointment right away. So off we went praying they would be able to help.
We got there and after lots of test were run, once again the Doctors and staff were great and reassuring to us that Avery was going to be OK. They felt that they could do the surgery - we just needed to go in front of the hospital board first. So, once agin we came back home to NC where we waited to here from them.
Finally, the phone call came in and it was great news they could do the open heart. But first they need to put coils in his heart so it was set up for January 9th. We cried for joy and so excited. We had an appointment to go back to Cincinnati on December 3rd when we got the devastating news that our insurance WOULD NOT cover the procedures Avery needed because they were considered to be “OUT-OF-NETWORK!”
As if it’s not hard enough, when Avery was born I resigned from my job, (which was our main source of income) to be able to take care of him.
However, because of one of the wonderful Doctors at the Cincinnati Hospital, we were able to get Avery in to be treated there. We are so thankful!
Each and every day is a new journey with Avery. We still do NOT know the whole of what we will be faced with because of Averys many condition(s). We DO KNOW we must continue to travel to as many different specialists as it takes! Therefore we must continue to go wherever we must to get Avery the treatments, surgeries, and whatever is needed to save out little Avery!Goes without saying, that we LOVE our Avery, and will do what every it takes to save our Son!
Thank you for considering to helping us, we are forever grateful - and God Bless to you all!
Organizer
Stephanie Darren Mashburn
Organizer
Marble, NC