My name is Ariya, it will be my 1st Birthday on the 3rd of September.
I was Born with a RARE CONDITION called Sturge Weber Syndrome.
I have a port wine stain that covers 90% of my face and part of my neck, i have hard to control seizures due to Bilateral Brain Involvement and i also have Bilateral Glaucoma.
Every month i travel with my family for 8,5 hours to get treatment, not including lots of other appointments in between.
I had my first of many eye operations and i love my hydrotherapy in the water at the local pool.
Lots of family and friends asked mummy and daddy what i want for my Birthday???
Well... i want to have a life like any other child, be seen like the rest, i want to run with my sisters and swim with my aunty.
I want to ride a bike with my uncle and Laugh with my daddy.
To do all these things I may need a little help from you all.
For my Birthday i would like to be able to continue with my therapy sessions to make sure im running by this time next year!
Lots of Love
Baby Ariya