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Baby Alastair journey fighting nec

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Baby Alastair journey to life is one of the most heart breaking thing to see and hear about. Alastair was born 2 months early and his lungs were under developed he was put on breathing support right away after a few days he was vomiting and as we know premie babies can develop nec despite asking the doctor if nec can be causing the vomiting and if we can stop feeds or do test to see if it was nec he had they brushed us off and said it was gas well they were wrong as a few days passed my son got worse and worse we woke up to emergency calls saying our son needed to go to surgery right away that's when they told us he has nec a bacteria that kills the intestine we rushed to the hospital and he was in surgery with in the hour . Walking him down stairs and saying bye and touching and kissing him not knowing if he would make it out was the most difficult thing I have ever gone threw. When he got out they told us they removed some of his intestine and had to bring the rest out to his stomach where he will have to poop in a bag we also were told because of the intestine opening in the stomach he developed a bacteria infection in his blood and he was septic. We went home later that night and got a call saying one of us needed to be at the hospital right away the doctors didn't think he was going to make it . He then was on life support for two weeks. In that two weeks we found out the hospital switch him and his brothers blood type and gave him the wrong blood. A few days went by after that first surgery and I asked the doctors why does his incisions look worse and a couple of nurses noticed as well we were all brushed off by the surgeon and they kept saying it was fine till finally one surgeon put his foot down and said this is not ok and took X-rays and said he needed to go into another emergency surgery our son was still on life support at this point he was rushed to surgery where they took out 3 more parts of intestine and fixed two holes he had . Had they listened to us the first two times and done more test maybe the nec wouldn't of been as bad or we could of done something sooner or had my son got the right blood maybe he would of had a better chance to fight all this . We waited and waiting for his 3rd surgery to come and put his intestines back together when they did that surgery we thought it was successful but it was not he started to leak poop in his abdomen and out his incision so they rushed him to his 4th surgery and had to bring the intestine back out to his stomach and he had a bag to use the restroom again he also got a g-tube to help him eat all that did was leak acid and ate his skin and hurt him so we as his parent made the decision to tell the doctors take it out it was not helping his healing process once the g tube was out the hole got smaller and the doctors wanted to try to put it back in with the hopes now it won't leak because that feeding tube is something he needs so we agreed but over that time the hole got bigger and bigger and the acid started to eat his skin again so as his 5th surgery was approaching we told the doctors take it out we are going to give our son the chance to heal on his own and eat on his own the doctors kept trying to convince us to leave it but we put our foot down and told them no and it was one of the best decisions we made for him . He has recently had his 5th surgery to put his intestines back together and so far they have stayed together how ever he had another hole in his intestine and they had to remover more and take out more intestine. Now our son only has 40% of his intestine left also even tho they closed where the feeding tube was it reopened and he now has a hole in his stomach we are hoping it closes on it's on or he will need to have it surgically closed but we are waiting to see because he for sure needs one more surgery which will be his 6th surgery and it's to put a pick line in his chest to his heart to feed him threw the iv when he goes home . We just want our son healthy and want him to know we love him with all our heart and will be there every step of the way he still has a really long recover to go but we are so proud of him fighting so hard ! Please spread baby Alastair's story and please keep him in your prayers !
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    Organizer

    Alana Villanueva
    Organizer
    Long Beach, CA

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