Dear Friends, Family, and Kind Strangers,
Our beautiful daughter Adaline came into this world on May 18th, 2025 with the biggest blue eyes and the sweetest smile you’ve ever seen. From the moment we held her, she has brought light and joy into every room she enters.
Adaline was born with hemifacial microsomia (AKA “Goldenhar Syndrome”), a rare condition that affects the development of one side of her face—her left ear is underdeveloped (Atresia and grade 2–3 microtia), her jaw is slightly shorter on that side, and she has a few small related findings like an eyelid coloboma and a cheek dermoid on the other side. She’s also been rocking a cranial helmet since she was just a few months old to help shape her head perfectly as she grows.
None of this has slowed her down for a second. At six months old, she’s already laughing, rolling everywhere, grabbing toys with determination, and charming every doctor and nurse she meets. She’s strong, curious, and full of personality.
Over the next several years, Adaline will need a series of planned surgeries and treatments to help her hear well, reconstruct her outer ear, and make sure her jaw and bite grow symmetrically so she can eat, speak, and smile with ease. These include possible jaw lengthening around school age, ear reconstruction (we’re leaning toward the Medpor option so it can be done earlier), and a couple of smaller procedures for her eyelid and cheek. We’re fortunate to be under the care of an incredible team at Children’s Minnesota and Gillette Children’s Hospital who have guided us every step of the way since the day she was born.
While insurance covers a good portion of her care, the out-of-pocket costs for multiple surgeries, specialized travel for consultations, hearing devices, orthodontics, and ongoing therapies add up quickly. She will require advanced care for this condition throughout her life. Any support you can offer will go directly toward making sure Adaline gets every opportunity to thrive without financial stress weighing on our family.
More than anything, we want her to grow up confident and carefree—knowing she is loved exactly as she is, and that she has a whole village behind her as she becomes the incredible person she’s meant to be.
Thank you from the bottom of our hearts for reading Adaline’s story, for sharing it, and for any help you can give. Every dollar and every kind thought means the world to us.
With gratitude and love, Addie’s Mom and Dad ❤️






