Baby Aaron's Fight Against MPS-I


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This page was made in order to help alleviate some of the many costs that will be incurred for Aaron Sharp's medical treatment, so that Angela and the Sharp family can focus on what's most important: Baby Aaron.

Aaron Martin Sharp was born on March 11th, 2016. Full of personality, smiles, and a sweetheart just like his mother, Angela Sharp, Aaron has already brightened countless people's lives.

Over the Holidays, The Sharp family received news that no one is ready to hear: Aaron has a very rare genetic disease called Hurler Syndrome, also known as MPS type 1.

There is a continuous process in the human body of replacing used materials and breaking them down for disposal. Children with MPS are missing an enzyme called alpha-L-iduronidase which is essential in breaking down the mucopolysaccharides called dermatan sulfate and heparan sulfate. The incompletely broken down mucopolysaccharides remain stored in cells in the body causing progressive damage. For more information on Hurler Syndrome, please go to: http://mpssociety.org/mps/mps-i/

Hurler Syndrome does not have a cure as of this time, but treatments can be done to slow the progression and reduce some of the symptoms and pain involved with the rapid disease. Enzyme replacement therapy (which will be weekly IV infusions) and a Bone Marrow Transplant have already been discussed by Aaron's doctors. Unfortunately, since the disease is so rare, University of Michigan has not yet treated patients of Aaron's age. University of Minnesota has the treatment and providers able to help Baby Aaron fight this disease and slow its progression.

As many people know already, Angela is an amazing, loving, selfless, hard-working single Mom who has already overcome many hurdles thrown her way in life. The treatment and the future Bone Marrow transplant will be very costly, with Angela having to move to Minnesota for at least 6 months in order to give Aaron the care that he needs.

Any donation made will go towards the medical expenses, travel and accomodations, and missed wage expenses incurred.

The path ahead will not be an easy one, but Angela, baby Aaron, the Sharp family, and their friends are ready to fight.

Your help and your prayers are appreciated more than you will know. Thank you.

Isaiah 41:10
"So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand."

Donations (0)

  • Ashley Redford 
    • $50 
    • 29 mos
  • Collin Koschny 
    • $100 
    • 29 mos
  • Brooke & Joe DiDomenico 
    • $50 
    • 30 mos
  • Caitlin Witt  
    • $50 
    • 30 mos
  • Superior Landscape & Garden Center 
    • $500 
    • 31 mos
See all

Organizer and beneficiary

Allison Bul 
Organizer
Livonia, MI
Angela Sharp 
Beneficiary
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