Hi my name is Debbie and I am trying to help raise funds for my nephew Peter who is undergoing multiple surgeries to correct a congenital birth defect called Bi-Coronal Craniosynostosis. Peter's parents will need to take time off of work to help care for him after his surgeries and their insurance will only pay for a portion of the six figure sum the surgeries will cost. Peter's parents will still be responsible for paying a very large debt after insurance. This is a life saving surgery - not elective. Without these surgeries Peter's chance of survival is slim as this condition worsens if left untreated. Thank you in advance for helping me support their needs.
- CRANIOSYNOSTOSIS
Craniosynostosis is a congenital deformity of the infant skull that occurs when the fibrous joints between the bones of the skull fuse closed prematurely. Due to this closure, the baby develops an abnormally shaped skull because the bones do not expand normally with the growth of the brain. In some cases like Peter's, the growth of the skull is restricted enough to cause increased pressure in the head which can lead to loss of vision, developmental delays and eventually death.
Organizer and beneficiary
Debra Ronan
Organizer
West Haven, CT
Larissa DiJulio
Beneficiary

