Aziah Caleb's Cranial Helmet

Hello everyone,

We are trying to raise funds for our baby boy who is in need of a cranial helmet as soon as possible.

Aziah Caleb is a 6 month old strong, patient, and happy baby♡

He has had a rough start since birth, and even though it has been tough for him at times he always remaind resilient, he is our little fighter.

He was born with laryngomalacia, it is a birth defect characterized by the softening of the tissues above the larynx (voice box) that was causing noisy and difficult breathing, it has improved alot since birth and we are hoping he outgrows it soon. At 2 months old he was hospitalized for a week from having difficulties with breathing and eating. While there he got diagnosed with Encephalopathy. Encephalopathy is a term for any diffuse disease of the brain that alters brain function or structure, he went through many many test and blood work but unfortunately doctors couldn't get to the root of what is causing it. He also had gotten an NG tube placed in his nose and after 3 months he finally was able to eat on his own and got it removed but will still follow up with feeding therapy once a week for a few more months. While in the hospital after seeing many doctors, specialist and nurses they all noticed how he preferred to only turn on one side of his head and body, they diagnosed him with torticolis which is a rare condition in which the neck muscles contract, causing the head to twist to one side and with Developmental Coordination Disorder, he has significantly delayed motor skills for his age. Torticolis caused him to develop Plagiocephaly (flat head syndrome) and at 3 months he started physical therapy once a week to try and help correct it, unfortunately now at 6 months after working hard in his therapy sessions and at home, it hasn't improved and also has slight facial and moderate ear shift.

After seeing an Orthotic specialist, she recommended for us to start the cranial helmet therapy as soon as possible. Aziah Caleb would have to wear the cranial helmet for 23 hours a day for the next 3-6 months. If not treated it could lead to permanent head deformity and can cause future issues with facial mobility, misaligned features, speech problems amongst other issues.

Unfortunately insurance doesnt cover cost for helmets unless it's for post brain surgery use. We would have to come up with 2,500 out of pocket for the helmet not including monthly visits for helmet adjustments and we unfortunately don't have the funds necessary to cover the cost right now.

Any donation will be greatly appreciated and will be of huge help.

Even if it's just saying a prayer for Aziah or sharing this with others, we appreciate it all.

Thank you for taking the time to read this.

It was difficult for us to share this with a public forum but we need to do anything possible to help our son. We just want to provide him with a chance to the best life possible. Thank you.