Ayaz bebeğe SMA tip2 teşhisi kondu. Eğer tedavi edilmez ise yürümekte sorun yaşayabilir. Zolgensma gen tedavisi Amerikada ve Avrupada yapılmaktadır. Bu tedavi tek sefer yapılabilmektedir.
Hasta doğduğundan iki yaşına kadar olan aralıkta yapılabilmektedir. Ayaz bebek henüz 18 aylık, tedavisini olması ve sağlığına kavuşması için lütfen yardım edin ne kadar recognize bu ilacı alırsa etkisi o kadar iyi oluyor.
Hello, my name is Ayaz and I was born on July 1, 2019.
When I didn't learn to turn or started to crawl, my parents began to worry and had me tested.
It came as a shock to them when I was diagnosed with SMA Type 2. This very rare disease means that I will never be able to sit up, take my first steps holding my mama's hand or run with my friends.
Increasingly I will also struggle to swallow and to breathe, until eventually I won't be able to breathe at all.
My parents learned about a treatment that can help children like me. But this treatment - zolgensma.com - costs more than 2 million dollars - an impossible sum for my family.
Please help me to live a normal life, like any other child! Any contribution, large or small, makes a difference.
And please share this appeal!
What is spinal muscular atrophy (SMA)? https://care.togetherinsma.eu/en/home/introduction-to-sma/smn1-gene.html
SMA is a rare genetic neuromuscular disease that affects the part of the nervous system that controls voluntary muscle movement.
Hi I'm Damla Yıldırım, I'm doing the fundraiser for Ayaz Ünen
Ayaz Ünen is a 13month old baby SMA
Ayaz Ünen my sister's baby
The fund raised will be spent on the baby
Under the control of the Mehtap Sambur Ünen.
Organizer and beneficiary
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