Ayaansh Needs Expensive Drug. You Are Last Hope!!
Donation protected
**Cost of the drug is over $2.1 USD million**
*$1 USD million goal in campaign running in gofundme, over $215k USD collected*
*$2.1 USD million goal in campaign running in India, over $1.7 million USD collected http://impactguru.com/s/aHvvEr*
Ayaansh fights SMA 27th May 2018- the happiest day in the life of Rupal and Yogesh Gupta, the day their son was born. With tears of happiness in their eyes, they named their kid Ayaansh. As their lives began with their new addition to the family, at around 6 months of age, they realized that little Ayaansh was missing the milestones which were usually achieved by other kids his age. He hadn’t started crawling or wasn’t sitting up. They started reading about why this could be happening and thought that it would just be a normal delay and eventually it would happen. Little did they know that something far more severe is happening in their son’s body.
When he didn’t have the control to even hold up his neck at 8 months of age, the parents were worried and took him to Rainbow Children’s Hospital. There, after countless consultations and appointments with multiple specialists, the parents found out that Ayaansh is suffering from SMA, a life-limiting condition where for the majority of children (approximately 95%) life expectancy is less than 18 months. “We felt our lives were shattered when the doctors said that he will not live for more than 4-6 years.”
Currently, Ayaansh is of 2 years and 8 months of age and has a chest deformation called pigeon’s chest. He requires physiotherapy daily for at least 4-5 hours. Completely on a liquid diet, he is unable to swallow properly and on a good day he throws up whatever he eats twice. On an average day, he vomits around 5 times. He needs BiPAP support for breathing for 12 hours a day and often suffers from sleep apnea. Even when he has a cough the little boy needs a tube i.e. catheter to remove the phlegm.
There is only a ray of hope for the little boy, the world’s most expensive medicine – Zolgensma. This is the ideal time for little Ayaansh to take the medicine as it is only approved for children who have a bodyweight of fewer than 13.5 kilograms. Ayaansh’s weight is 10 kilograms. But the world’s most expensive medicine is not possible to arrange for a middle-class couple like the Guptas. 16 crores is an impossible amount to arrange.
*$1 USD million goal in campaign running in gofundme, over $215k USD collected*
*$2.1 USD million goal in campaign running in India, over $1.7 million USD collected http://impactguru.com/s/aHvvEr*
Ayaansh fights SMA 27th May 2018- the happiest day in the life of Rupal and Yogesh Gupta, the day their son was born. With tears of happiness in their eyes, they named their kid Ayaansh. As their lives began with their new addition to the family, at around 6 months of age, they realized that little Ayaansh was missing the milestones which were usually achieved by other kids his age. He hadn’t started crawling or wasn’t sitting up. They started reading about why this could be happening and thought that it would just be a normal delay and eventually it would happen. Little did they know that something far more severe is happening in their son’s body.
When he didn’t have the control to even hold up his neck at 8 months of age, the parents were worried and took him to Rainbow Children’s Hospital. There, after countless consultations and appointments with multiple specialists, the parents found out that Ayaansh is suffering from SMA, a life-limiting condition where for the majority of children (approximately 95%) life expectancy is less than 18 months. “We felt our lives were shattered when the doctors said that he will not live for more than 4-6 years.”
Currently, Ayaansh is of 2 years and 8 months of age and has a chest deformation called pigeon’s chest. He requires physiotherapy daily for at least 4-5 hours. Completely on a liquid diet, he is unable to swallow properly and on a good day he throws up whatever he eats twice. On an average day, he vomits around 5 times. He needs BiPAP support for breathing for 12 hours a day and often suffers from sleep apnea. Even when he has a cough the little boy needs a tube i.e. catheter to remove the phlegm.
There is only a ray of hope for the little boy, the world’s most expensive medicine – Zolgensma. This is the ideal time for little Ayaansh to take the medicine as it is only approved for children who have a bodyweight of fewer than 13.5 kilograms. Ayaansh’s weight is 10 kilograms. But the world’s most expensive medicine is not possible to arrange for a middle-class couple like the Guptas. 16 crores is an impossible amount to arrange.
Fundraising team: Pawan Gupta - Uncle of Ayansh (5)
Pawan Gupta
Organizer
Cary, NC
Abhishek Sekhri
Team member
Srimanta Sahu
Team member
Dinesh Purushothaman
Team member
Abhishek Vyas
Team member
