Hey everyone! As we know, my son Axel was diagnosed in utero with a rare condition called hypoplastic left heart syndrome. He spent the first seven months of his life in Children’s Hospital of Philadelphia, where he endured two open-heart surgeries and suffered from a stroke permanently affecting the left side of his body.

We will be headed to Philadelphia on Sep 26th for pre operative testing. Axel will have his lymphangiogram done on September 29th. This will determine whether or not he is a candidate for his third open-heart surgery. The cardiac team and the lymphatic team will be having a meeting on October 1st to discuss the results with me. If they can move forward with surgery, he will be going for his third open-heart procedure on October 3rd. If not, he will be listed for transplant.

I am so thankful for the overwhelming amount of prayers, love and support that I have received from my friends and family and I hope together we can all spread awareness to this super unfair, congenital heart disease.

Axel is 1 of 100,000 and that is something worth bragging about.

We love you all and continue to thank you from the bottom of our hearts for everything you’ve done for us on this journey.

Love always,

Kristin & Axel ❤️