Kai’s Therapy Dog!

Many of you have asked me or Amber and Danny’s friends and family how you can help the Pierson’s directly. We decided to start this GoFundMe in order to give back to the family who gives so much of themselves to others. We will be surprising them with the log in and funds on December 11, 2019, Kais’s 2nd birthday! Please share this link with anyone you know who may want to help this phenomenal family!

For those who may be reading this and don’t know their story:

On December 7, 2017 Amber and Danny Pierson learned that their son, Kai, had a life threatening condition due to an abnormal accumulation of cerebrospinal fluid in his brain. He was diagnosed in-utero at 36 weeks with hydrocephalus, and they were forced to make the painstaking decision to proceed with an emergency c-section in order to surgically relieve the pressure in his brain. On December 11, 2017, Kai Andrew Pierson entered this world, and within minutes was whisked off to Nationwide Children's Hospital to have emergency brain surgery. To relieve the hydrocephalus, Kai was given a medical device called a shunt. Amber and Danny were hopeful that this shunt would resolve his health risks, but they soon learned that this was just the beginning of Kai's journey. The doctors identified a brain deformity that had caused the hydrocephalus in the first place, along with a plethora of other conditions. As of today, Kai has been formally diagnosed with Dandy Walker Syndrome, Hydrocephalus, Epilepsy, Optic Nerve Hypoplasia (meaning he is clinically blind), along with some developmental delays. While his daily challenges are great, they have not let these conditions stop Kai from working toward living a full and very happy life!

Amber quit her job as a teacher to make sure she could take the best care of Kai and get him to every therapy, neurology, and doctors appointment necessary for him to continue conquering each challenge he is faced with! In his short 22 month life, he has already had multiple brain surgeries, MRIs, EEG's, Cat scans, and many, many more tests. He is truly the strongest little man I know, and Amber and Danny have shown immense resilience and optimism through the entire process - they are just so thankful to have their little man! They are truly a family of faith, and they know that Kai is destined for amazing things in this world. 

If you know this amazing family, you know they have spent countless hours volunteering and working to advocate and fund-raise for those who suffer from hydrocephalus and countless other developmental delays. They have truly dedicated their lives to serving others through their experience, and have asked for absolutely nothing in return. While insurance has been a blessing, the reality is that insurance does not cover much of the cost of future aides for Kai - walkers, leg wraps, changes to their home so that Kai can get around, service pets, and the daily necessities to help Kai live as normal of a life as possible just barely scrape the surface.

While they would never expect a dime or favor from anyone, its our turn as friends and family to support these people who are ALWAYS showing up to support us. We are hoping to help make Kai's 2nd birthday extra special by providing a little financial relief to this amazing family who has been through so much. If you are unable to give financially, please consider writing a prayer or a kind word of support that Amber, Danny, and Kai can carry with them! 

Thank you so much for the continued love, kindness, and support to this AMAZING family!