Ava Madeleine Blenus was born prematurely July 16th, 2017 with a complex heart. She had a hypoplastic right ventricle, what was originally diagnosed as Double Outlet Right Ventricle and is now known as a TGA - Transposition of the great arteries, a VSD (Ventricle Septal Defect) and pulmonary stenosis. On the first day after birth Ava underwent a Atrial Ballon Septostomy, where they went through her belly button and all the way up to her heart and created an additional hole, an ASD ( Atrial Septal Defect ). Ava was in NICU for just over 2 week and then got to come home with her family and be closely monitored. She had a cardiac catheterization in October because she was becoming quite blue. Doctors felt she would need to have open heart surgery sooner than later but she was able to wait and grow until now, at 6 months of age.
She underwent an 11 and a half hour open heart surgery in which they did a Damus - Kaye - Stansel Procedure and a Bi-Directional Glenn Connection. This was the first of two planned open heart surgeries. She will undergo another between 2-4 years of age.
She is currently in recovery and is being monitored very closely. More updates to follow.
Please keep Ava and her family in your thoughts and prayers.
For those of you who would be more comfortable with ETransfers they will be accepted to [email redacted] . Any funds not used during Ava’s Recovery will go to “Ava’s Heart Project” a Fund started in her name to raise CHD awareness and research
Thank you in advance to everybody who has been supporting the family and who continues to support them.
#AvaTheHeartWarrior to show your support and to let the family know you're thinking of them
DonationsSee top donations
- Allyson Higgins
- Rick & Gail Wittenberg
- Emmerson Woolaver
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