Aurora Arthur family survival fund

Our 10 day old little bundle of joy felt a little hot to our lips, she was tightly bundled and it was a warm night all of us in our big bed,  so we retrieved our new baby kit and got out the included thermometer, read the instructions and proceeded to take what's referred to as an 'axial' reading (from under the arm pit) It read 99.7 the first time. I jumped on good ol' you-tube and began collecting information about infant fever. We called our wonderful midwife and she told us to meet her @  the birthing home, it was after 10pm and the clinics 25 miles away were closed, and almost 50 miles to the hospital. When we went in and our midwife checked her, she was 97.9  'axial'. It was reccommended that we go to see the pediatrician in the morning, and suggested we may want  go to the emergency room for an assesment. Our vehicle was questionably capable of making that trip. We stayed up all night monitoring her, and observed that her temperature was well within 'normal' levels for a baby under 2 months old. (97.6-100.4) Although she was fluxuating sometimes up to a whole degree at a time, it was a cheap thermometer and she was still within normal range, and appeared to be her healthy happy self.  Early the next morning we went to the pediatrician. While standing in line at the window, a nurse's assistant came out and checked Aurora's temporal temperature with a fore-head digital thermometer, it read 100.2. We were told to head on to the hospital to be assesed. When we came through Hilo hospital emergency room admission, she registered 99.8 with a rectal thermometer. (99.6 is normal for rectal readings) We sat in an aptly named extreme trauma unit for 6 hours while they gave her a catheder, took them 3 amateurs 6 tries to get an IV in, took her blood twice and were insisting we let them give her a spinal tap right there in the hilo emergency room. Following 6 hours of being in this trauma unit we were traumatized. When we were officially admitted to Hilo hospital, Aurora's temp. was 99.6, Absolutely normal. She was given 4 different antibiotics, salt sugar and antivirals, and 24 hours later Aurora started having seizures.   The paperwork I asked for listing the medications, warned not to give these medications to children, pregnant or nursing women and to take birth control if you could become pregnant. Seizures was one of the listed side effects. We were informed after about 48 hours after being admitted that we needed to be medivac'd to Kapiolani women and children's hospital. Upon our arrival to the Neonatal Intensive Care Unit we submitted to a spinal tap. Aurora's condition turned out to be an extremely rare form of viral encephalitis.  While in utero,  a virus had slipped through her membranes and gotten into her brain, wreaking havoc. MRI scan  revealed a swollen, yet slightly stunted left temporal lobe, and multiple areas of 'insult' to the center, and the exterior of her brain.  All the while she appears to be a completely healthy baby girl.  The nuerologist explained that she will have a number of disabilities, and since the virus was still running rampant, the damage hadn't ceased yet.  They inserted needles in her scap to monitor barainwave function while she had multiple seizures. We watched and cried as we could do nothing to stop her pain and suffering.  She was given a 'pick-line' in a major artery,  replacing the 3 day old bruised leaking mess of an IV line, removing alot of unneccesary adhesives and popsicle sticks from her arm.  Aurora was placed on Pheno-barbitol and a TPN pump, in addition to the anti-viral concoction.   She stopped breastfeeding and required extra nutrients and fluids. Over the next few days we had some ups and downs, as her appetite and general body function fluxuated. We were informed that because of an early admission in old paperwork, smoking marijuana to alleviate the nausea and cramping, We were now uneligible to stay in insurance-provided accomodations for parents from outer islands who need a place to stay while their baby is under weeks, if not months of treatment at the hospital. There are no beds for parents.  We will have to stay in oahu for an undetermined amount of time, but 3 months is an average estimate when polling various doctors and nurses. We need basic funding to survive, as our small savings is now depleted.  
Thanks for your support, prayers and love.
The need is urgent.
Aloha.