Please Help Us Help Scarlet Rose

On April 23, 2025, Kirsty (10-year veteran server at Donovan’s Woodside) and Eric Roman welcomed their beautiful baby girl, Scarlet Rose, into the world.

Here we are just a few months later, and little Scarlet is facing the types of medical issues that most people will never face in their entire lives. To be blunt, she is fighting for her life.

Her main battle right now is a rare brain mutation called Neuro D2. It’s so rare that there are only TEN cases of it in the entire world right now. Can you imagine how terrifying that is?

This condition is causing a rare and severe form of epilepsy known as infantile spasms, as well as Agenesis of the Corpus Callosum, which is a rare congenital brain disorder. I ask again, can you imagine how terrifying that is?

On top of this, little Scarlet is suffering from Stridor, which is causing breathing difficulties and vocal cord paralysis.

The road ahead is incredibly long and more difficult than any of us can imagine. Little Scarlet is already undergoing physical and occupational therapy. There is a high likelihood of severe intellectual delays along with difficulty walking and talking.

Kirsty, Eric, and their entire family have so much to worry about. I can’t imagine the weight they are carrying. There is nothing we can do to directly help Scarlet other than pray and pray some more.

However, we can perhaps lighten one burden, even if just a little bit. Can any of us imagine the costs associated with such rare conditions? Their focus should be 100% on Scarlet, so if we can all chip in, whatever we can, maybe it can take this one thing off their mind for just a little while.