My little Aubrey was born with a gene mutation called GNB1 variant p.Leau95Pro C.284T>C. There are only 65+ kids in the world with this mutation and only three with her exact variant. GNB1 has caused several disabilities for Aubrey such as Cerebral Palsy, Cleft Palate, Pierre Robbins, Hypotonia (low muscle tone), Epilepsy, Scoliosis. We see several specialist weekly at the children's hospital while also participating in physical therapy, occupational therapy, speech, and feeding therapy so we stay very busy and keep the road hot. We are fundraising because as Aubrey gets older her needs for special needs equipment is becoming more and more important for her to get the best quality of life. As she gets bigger the needs for a handicap vehicle is in our very near future, lifting her in and out of a car is getting harder and harder for her momma. Aubrey is also in need of other equipment such as a bath chair, activity chair for her low tone so she can sit up properly to eat, a floor mat that helps her relax to do therapy and supports her low tone on the floor. Aubrey also has future surgeries coming up as well as cost for all her monthly meds . 

XOXO- Christie & Aubrey