I really hate asking for help, but I don’t know what else to do. Being disabled and having a chronic illness is expensive. In 2022 I was diagnosed with MS and over the past few years, my ability to care for myself and my dog has declined. A lot of you might not know this because I try to be very positive about everything and don’t talk about my struggles much.
My world has become very lonely and small because I moved across the country away from my family and friends and my community is very small and almost non existent out here. I can barely cook for myself because of my fatigue and dexterity issues, so I end up depending a lot on frozen meals and delivery. I can no longer walk far distances and can’t afford a proper mobility aid, so I end up taking Ubers because I can no longer drive due to my impacted vision. I get all my groceries delivered because I cannot walk with heavy bags or navigate a busy grocery store with a cart, it’s just not an option for me anymore. Walking my dog 3 times a day can sometimes be a challenge for me, but I can't afford to pay someone to help so I make sure to care for him before myself. I have to live in more expensive apartment buildings for accessibility and the need for an elevator. This is not even counting my medical bills that continue to pile up. The medication I have to take to stay alive and able to walk costs $200k a year which thankfully my insurance mostly covers, but there are still surprise costs that pop up. I have no assistance from family or a partner, I’m doing all of this on my own.
Living as someone with a disability is like living as a wealthy person but I am not wealthy. I am looking for some help to cover all of these costs I must incur just to stay alive. This is really hard for me, any help is appreciated, I love you all ❤️
Organizer
Nicole Surawski
Organizer
Los Angeles, CA