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Feb 2019 update from Asher’s Mommy:
February 14th we had Asher's monthly eye exam under anesthesia, 6 month MRI, and hearing test.
His MRI showed the cancer was contained in his eye.
His eye exam showed tumor growth.
They made an incision in his right eye and did cryo therapy on the tumor. With 2 little stitches on his right eye.
They did laser therapy on the left eye.
The doctor doctor didn't feel comfortable waiting 4 weeks so they scheduled us to come back for an eye exam in 2 weeks on the 28th.
We talked about options with the doctors. I was obviously a mess. To say the least.
Feburary 15th Asher got his super cool hearing aids. (Due to his hearing loss from the chemotherapy) Papa picked a super cool orange and black ear mold.
That's been interesting. He's REAL quick at pulling them out and REAL wiggly when putting them in.
On January 10th Asher got his broviak (central line) removed and on January 13th (Ben's 30th birthday) Asher had his first real bath.
Feburary 21st they called us and told us they wanted to put in a port and most likely start chemo on the 28th after his eye exam.
February 28th THE RIGHT TUMOR RESPONDED WELL TO THE CRYO. THE LEFT TUMOR RESPONDED WELL TO THE LASER.
HIS PORT WENT IN FINE.
We will start a different chemotherapy today for 5 days in a row.
I ask you to please keep our baby in your thoughts and prayers.
The last 2 weeks have been hell. But to learn his tumors responded well to his last treatment, Jesus, my heart is so full.
p.s. Asher loves the itsy bitsy spider. Patty cake is a second favorite but HATES rolling it up, OBSESSED WITH BOUNCING (shoutout to our awesome neighbor Hollie for the bouncer) and has 2 teeth now! His hair just started coming in and I'm sure will be gone again soon, he also started crying and growling at the same time. And loves to show his tongue to everyone and thinks other peoples tongues are pretty great too!
From Asher’s mommy:
July 2nd: Asher was born.
July 4th: We left the hospital.
July 5th: We went to the pediatirican
July 9th: Asher was diagnosed with cancer. ONE WEEK FROM HIS BIRTHDAY. I don't know how Ben got Asher and I out of that doctor's office. That was the 1st time I've seen my husband cry in 8 years.
July 11th: Asher had to fast. I HAD TO NOT FEED MY NEWBORN BABY.
July 12th: We handed our baby over so they could put him to sleep AT 10 DAYS OLD.
fast forward an hour. WHICH FELT LIKE DAYS
They told us Asher had one tumor in each eye.
They told us his vision would be compromised
They told us they wanted to do 6 month minimum chemo treatment plan 28 days apart.
They told us they wanted to start that day.
They told us they wanted to do surgery and implant a broviac (a type of central line that allows for long-term access to blood)
fast forward a couple hours
Surgery was done.
Hearing test was done.
They told us he didn't do well on his hearing test. But it might be because he is so young.
fast forward a couple of hours
They wrote his chemo treatment.
We signed a bunch of papers.
One of the medicines in his chemo treatment COULD cause side effects of hearing loss and a bunch of other things.
July 16th: Home health came out and taught me and Ben how to give Asher his medicine through the IV. They cleared Ben day 2 with flying colors. He was so fast at setting up the pump, priming the line, and giving him the right meds in the right order the nurse was so impressed. After only seeing it done once. It took me 4 days to get cleared, I couldn't stop crying and I was so nervous I couldn't even open an alcohol swab.
fast forward 3 months...
We have completed 3 rounds of chemo.
Asher's 4th round of chemo is this Thursday.
His hearing has been compromised because of the chemo
Life doesn't prepare you for the words YOUR CHILD HAS CANCER, it doesn't prepare you for WE WILL FIGHT FOR HIS LIFE and THEN his vision.
Tomorrow is October 9th, our first year wedding anniversary. And I've been a complete wreck for 3 months.
Benjamin, after Asher was diagnosed I wouldn't eat. BUT YOU went to work, came home from work, made the most delicious meals and MADE me eat. MADE me pump so YOU could feed the baby. Changed so many diapers without ever complaining. PREMADE meals so I didn't have to think about eating.
You let me cry for months, you always smiled and told me all the amazing things that Asher was going to accomplish in his life. Over and over and over again. You would tell me the most amazing stories about what we would teach him and how he was meant to change the world and affect other people in his life in the most profound ways. In September you told me you believed our son could be a pilot or a sniper, I believed you. I do believe you.
YOU GAVE ME HOPE when I was empty. You gave me strength when I didn't think it existed. You let me be mad at the world and then reminded me how blessed we were. You made me feel safe when I felt like I was going to lose my baby. You reminded me everyday that I was a good mom when I wasn't strong enough to be.
I spent months planning everything for Asher's homecoming and we were quickly reminded that life has it's own plan.
Months being worried about money, paint colors, the nursery decorations, getting everything washed and hung for baby, everything put together, I'd give it all back to make my baby healthy
KISS YOUR BABIES AND PLEASE PRAY FOR MINE.
Ben I thought I fell in love with you 8 years ago but I can't believe how much that love has grown. We have changed so much and so has the world around us. Thank you for holding our family together. Asher and I are SO BLESSED to have you.
- Paige Braddy
- Ramona Shaffer
- Valerie Fish
- Anais Elisher
- Aileen Wilson
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