Arias charity fundraiser❤️

Aria is almost 2 years old and was born with a rare genetic syndrome, that affects her heart and physical and mental growth. Aria has been in and out of hospital her whole life, open heart operations, and several other operations she has been in 3 induced comas in her short life already, at one month old aria had a cardiac arrest that left her very weak, her 1st birthday aria was in intensive care due to her lungs collapsing.constantly having oxygen sats of 20 and below. viruses and infections it was never ending. But kabuki kids are strong and with the help of charity’s they can become even stronger. As the genetic disease is so rare the help towards the charity is very limited so this is where the fundraiser kicks in we are raising money to help support family’s with kabuki syndrome with Equipment Support and Research. And the chance to share awareness please help us with our journey.

Do you want to join me in making a difference? I'm raising money in aid of Kabuki Syndrome UK and every donation will help. Thank you in advance for your contribution to this cause that means so much to me.

More information about Kabuki UK: 1. To raise awareness of Kabuki Syndrome. 2. To provide information, advice and resources about Kabuki Syndrome. 3. To fundraise, with both regional and national events, to support the charity's aims. 4. To organise and publicise family events, fundays, which will provide families affected with Kabuki with a chance to meet other families and share experiences.