Aria's Journey

Aria is a tiny but mighty 21 month old beautiful baby girl. Her whole life from day 1 has been a struggle that we like to call her journey.  She was diagnosed with Hydrocephalus in utero. Shortly after at 4 months old with tone issues, floppy baby syndrome and developmental delays. 17 months vision issues, hearing issues and speech delays. 20 months old hypotonia, cerebral palsy and severe hearing loss.  This amazing little girl has not been able to catch a break but that doesn't stop her.  She is a true warrior in her journey and definitely an inspiration to so many with her will power and not letting anything stop her or slow her down. With everything she has faced, the struggles she deals with daily and obstacles still to go through we wouldn't change any of it as this is who she is! She is the definition of Warrior;a true fighter.  As she has her struggles Chris and I are behind the scenes with ours. Having a special needs baby isn't easy. I always joke with him saying "You have to be rich to have a child with special needs". Lol But God placed this Perfect little human in our arms for a reason. He chose us to be her parents and we're doing everything we can to give her the care and provide her with everything she needs. You know that saying, it takes a village to raise a child? Well that's definitely true. We're trying our best but we need a little help.  There is several items and bills she has that we could use some help on and reason for the Go Fund Me account. Several of her specialists, therapists and doctors have suggested trying to get an iPad mini. There are many programs, apps and resources that would be so beneficial in helping Aria succeed with learning, speech and hearing. Also, her therapists have used thier personal one as a distraction when working on standing and taking steps. Along with that a very toddler proof case, several apps, programs and a few accessories.  Also, she received her AFOs last week. Unfortunately, we did not take into account that her feet are so small and she needs a more wide shoe. They do not make wides for infant sizes unless you order shoes made for AFOs. They are not cheap. We're fighting with insurance to cover the cost but so far it's not looking good. We do have temporary shoes that work somewhat but couple sizes to big. She really would benefit from having the orthopedic shoes to wear with her braces.  Then comes the other things that we were going to tackle but outstanding medical bills, special toddler bed with rails, sensory and therapy toys, Pysical therapy equipment, Play Therapy and the list goes on. We have been so blessed with the love and support you all have given us since day 1 of her journey. All the prayers and support never goes unnoticed. And we thank each and everyone for it.  It would be a blessing if you are able to contribute to her journey and/or to share this post and her story with others. We can't do it without you and need our village to help us. God Bless, Casey, Chris, Jett and Aria


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Casey Henson 
Kansas City, MO
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