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EB: The worst disease you've never heard of

In March 2018, I and a group of 18 other women will travel to the Arctic, camp out and learn to survive the extreme polar cold. Yes, it will be an adventure, but importantly, it is all in a bid to raise awareness and funding for those suffering with EB (epidermolysis bullosa), a truly awful disease that leaves children with delicate 'butterfly skin', meaning even a hug can be painful and cause injury. 
DEBRA Ireland is a national Irish charity, established to provide support services to patients and families living with this extremely debilitating skin condition. They also drive research into treatments and cures for those living with the condition.
DEBRA provides hope and support to the 300+ peope living with EB in Ireland today. 
Please help me raise funding for this truly wonderful charity which receives no guaranteed Government funding, and help improve the lives of those that suffer, and of their families who are generally the full-time carers. Even a small donation will make a difference as I try to reach this goal! Thank you!

Note: For Corporate Donations with tax relief, please feel free to make a direct donation, referencing 'AOD, Arctic Challenge' to:
DEBRA Ireland
IBAN: IE17 AIBK93109803800009


  • Anonymous
    • €25 
    • 6 yrs


Ann O'Dea

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