Archie’s NAPA Intensive - physical and occupational therapy

We are raising funds to support Archie’s intensive physiotherapy, occupational therapy, and speech recovery treatments — therapies that could transform the quality of life for this brave little boy living with Dravet Syndrome.

Dravet Syndrome is an extremely rare and severe genetic form of epilepsy that is drug-resistant and currently has no cure. Archie was diagnosed as a baby and has suffered from life-threatening seizures since he was just three months old — some lasting from two hours to over 48 hours, even with hospital intervention and rescue medication.

So far in 2025 alone, Archie has spent more than six weeks in hospital, including high-dependency unit (HDU) visits two to three times a week and enduring over 20 seizures a night.

Despite all of this, Archie is a fighter. He’s determined to stand, walk, communicate and play with other children — even when his little legs fail him. He never gives up.

This is where we can help give Archie the chance to live, learn and play like every child deserves.

We are hoping to enrol him in four intensive therapy programs at the world-renowned NAPA Centre — three focused on physiotherapy and occupational therapy, and one for speech and language using assistive technology to help him communicate through devices. (This has now increased as we have surpassed our initial target).

Archie is the happiest boy when he feels well — and every contribution, no matter how small, brings us closer to giving him the best chance at recovery and a better quality of life.

Thank you so much for reading Archie’s story and for any support you can offer. Every penny means the world to us.