Please help me to get surgery to help me breathe.

Hello, my name is Viktoria, and I was born in Slovakia.

My parents were looking forward to my arrival very much,though they certainly did not wish for me to be born prematurely and with underdeveloped lungs. Doctors had to act fast and decided to put me on oxygen. This is where my journey has begun. Too much oxygen at once caused a massive grade 3 brain haemmorhage on the right side and grade 4 on the left. The first mention of my future mental and physical disability followed at the speed of light. Fortunately, as I am humble,  I settled for the physical disability only. Special motor activities and exercises became my daily routine.

As all parents do, mine also wanted the best for me, so we moved to Ireland in 2007. Although I could not walk, I was the fastest amongst my peers, having received my own first vehicle, my first electric wheelchair. Everything seemed super. My father would say I was talented, a better driver than him. However, our joy did not last long. As I was sedentary and could only move in a wheelchair or be carried around in my father’s arms, my joints were not developing properly. The first joint pain arrived, and when I was 8 years old, I then had my first hip operation.

My journey continued, albeit all downhill. When I was 10, I acquired a new diagnosis – scoliosis. Consultations with doctors about my future were and continue to be endless because the system and the waiting time for the scoliosis operation in Ireland are not aligned. Instead of waiting in a queue for ice cream, I have been queuing for a potentially life-saving operation. Even though after many years a doctor pronounced that scoliosis had no impact on my internal organs and that I did not need the lung capacity as I would never run after a bus, we do not believe that to be true. I can tell you for myself that not only has scoliosis bent my back but it has also removed oxygen capacity from my lungs, developed pressure on my heart, taken away my appetite and stolen the smile from my face.

Today, as I am writing these words, I am 18 years old and I weigh 32 kg. I am battling cerebral palsy, spastic quadriplagia, and a severe scoliosis. My parents have located doctors, masters of their craft, at the orthopedic clinic in Brno, the Czech Republic, who are willing to restore my smile and appetite, rid me of the pain, and extend my life, but it is very costly.

My parents, trying as they might, are unable to raise the funds needed, which is why I am pleading to you for help. Please help us put a smile back on my face. Thank you.

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Irish Independent Newspaper Article on my case

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