Enable Anwen to go to London for life changing surgery

As you all know I have two beautiful twin daughters born last year (they are 1 already next week!!) called Seren and Anwen. Anwen was born with a rare condition called cloacal malformation. In lay-by terms it is easiest to explain what her condition is if we go back to how babies develop in the womb. All foetuses grow with one waste outlet tube until they are approximately 6 weeks. Then after this gestation period if the foetus is is a girl it later splits into three. However, with Anwen hers did not continue to split and she remained with just the one waste outlet. In addition, her kidneys did not grow properly and she only has one working kidney which even that doesn’t work as well as it should. She was born without a bottom hole and only a partial hole from her undeveloped genitalia. On day 2 of life she had to have surgery to be fitted with a catheter and a stoma to enable her waste to temporarily exit her body in a safe way. Without this the waste would have built up inside her and she would have died. It is a miracle that she survived the pregnancy! She is now due to have life changing surgery that will permanently correct this malformation at great ormund street hospital in London. Such surgery is very complex with operation duration expecting to last anything between 5-12 hours. They will create a synthetic bottom hole and tube joining this to her large intestines to enable her to poo the way we all do, her vagina will be pushed down from inside her stomach and reconstructed externally and there will be a tube inserted from her appendix through to her bladder and through to her tummy to enable her to drain her bladder as if she stays on a catheter this presents her with more risk of getting infections which she has been hospitalised a few times for now since her discharge last year.

However, despite reassurance from them months ago this week the hospital have informed us they cannot give us accommodation to accommodate me, my mother and her twin sister seren and anwens recovery from this is likely to be up to two weeks. Therefore we have to live in London for approximately two weeks. The hospital is situated in central London and due to mine (for those of you that don't know I now have fibromyalgia) and my mums mobility issues we cannot travel to and from the hospital several times daily to be by anwens bedside from cheaper accommodation on the outskirts of London. In addition, we have not been guaranteed that i will have a bsl interpreter every day. We therefore are forced to have to stay in an apartment close to the hospital which of course will incur huge expenses that we cannot afford.

For those of you who dont know what our financial situation is I am a student spending the next four years completing my PhD part time and having to rely on benefits. My mum is only earning a state pension.

We therefore are turning to our lovely friends in a plea to help us out financially. Any amount is gratefully received and even if we do not reach our target we are so so grateful for any funds towards this essential cost so our gorgeous anwen can have her life changing surgery to enable her to have a better quality life and be the happiest little girl she can be.