Main fundraiser photo

Dave Ian and Raz (Ant) 20 mile charity bike ride

Donation protected
Connie is 11 years old and for the last 3 years has suffered with epilepsy.   To date we have discovered she has not responded to medications and despite invasive exploratory brain surgery she is not a candidate for curative brain surgery, she has commenced a medical keto diet meaning all her meals have to be carefully prepared at home but sadly still has many seizures without warning.  With this years cycling charity fundraiser Dave, Ian and Razza would love to be able to raise money to cover the cost of a seizure alerting smart watch for Connie to wear.  This would send an alert to her care givers phone if changes in her heart rate are detected which can occur when Connie is having a seizure.  Currently Connie is watched by an adult 24/7 and always sleeps with mum as her seizures are often silent and during sleep, this watch would allow her more independence and be peace of mind for all her care givers by ensuring swift intervention when a seizure occurs.

Organizer and beneficiary

Julie Wilkinson
Organizer
Claire Aldridge
Beneficiary

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