£5,005 raised
Annie's Appeal
Donation protected
We have set up this page to help raise money for Annie Smart, who was diagnosed with Rett Syndrome in December 2014. The money raised will help to pay for the things that Annie will need to enable her to have a more comfortable, supported and happy life. Initially, the funds will help to pay for Eye Gaze equipment which will allow Annie to communicate with the world.
EVENTS
18th April 2015 – Diane Woods, Beth Parkin & Victoria Slater will be taking part in the Xrunner ‘Wild Mud Run’ 2015. This is a 5k trail and mud run with over sixty challenging obstacles in the full race distance. The course promises lots of mud, water, tunnels, monkey bars, fire, giant walls, cargo nets, balance beams, hurdles, jacobs ladders, tightropes and an assault course.
******
19th April 2015 - A team from the University of Derby’s HR Department will be running 10km around Derby City Centre before a spectacular finish inside the iPRO Stadium, home of Derby County Football Club. Jenny Bennett, Matt Cox, Angela Hall, Sue Herriman, Nicky Mathiesen, Bev Millinchip, Liz Radford, Georgina Skliarshky, Helen Southall and Rob Woods will be hoping to complete the distance inside the maximum time of 90 minutes and avoid the ominous ‘Sweep Cyclist’. Half of the team have not run this distance before, so a real challenge for those in particular.
******
10th May 2015 – Rob Woods will be taking part in the Fred Whitton Challenge which is one of the most popular cycling sportives in the UK and is also famed as being particularly difficult. It consists of a 112 mile sportive around the Lake District, including all the Lakeland passes, one with a 30% gradient which comes at 98 miles.
The very top riders complete the route in just under six hours but eleven hours and over are not uncommon for the average Sportive rider. This is a very tough route and going on rider feedback it is considered the hardest one day ride in the UK.
******
- Annie’s story -
Annie was born healthy and developed normally until about 12 months. Soon after her first birthday, her family became concerned as she was showing no signs of crawling or walking and she wasn't reaching her developmental milestones in other areas too. Annie was referred for physio at the hospital as it appeared she had hypermobility. After further investigations from numerous professionals over a period of a year, she was eventually referred for genetic testing.
On the 4th December 2014 Annie’s family were devastated to learn that Annie had been diagnosed with Rett Syndrome.
Annie's dad Stephen Smart and a family friend Rich Thornewill are running the London Marathon in April 2015 to raise money for Rett UK, who look at researching treatments to hopefully one day provide a cure.
Annie, now nearly 3 years old is a happy and loving little girl who loves to laugh and be around people, but tragically she may never be able to speak or walk. Rett has taken away her freedom and independence before she even had a chance to enjoy it. Please sponsor us and help us to help this amazing little girl.
- A bit about Rett Syndrome -
Rett syndrome is a rare neurological disorder affecting mainly females and very few males. Genetic but not hereditary, it could occur in any family, affecting approximately 1 in 12,000 baby girls born each year.
Rett syndrome is a rare condition that affects the development of the brain. It can cause severe physical and mental disability that begins in early childhood.
Rett syndrome usually goes unnoticed for the first few months of the child's life, parents tend first to become aware of the condition when their child’s development slows. People with Rett Syndrome have profound and multiple physical and communication disabilities and are totally reliant on others for support throughout their lives.
EVENTS
18th April 2015 – Diane Woods, Beth Parkin & Victoria Slater will be taking part in the Xrunner ‘Wild Mud Run’ 2015. This is a 5k trail and mud run with over sixty challenging obstacles in the full race distance. The course promises lots of mud, water, tunnels, monkey bars, fire, giant walls, cargo nets, balance beams, hurdles, jacobs ladders, tightropes and an assault course.
******
19th April 2015 - A team from the University of Derby’s HR Department will be running 10km around Derby City Centre before a spectacular finish inside the iPRO Stadium, home of Derby County Football Club. Jenny Bennett, Matt Cox, Angela Hall, Sue Herriman, Nicky Mathiesen, Bev Millinchip, Liz Radford, Georgina Skliarshky, Helen Southall and Rob Woods will be hoping to complete the distance inside the maximum time of 90 minutes and avoid the ominous ‘Sweep Cyclist’. Half of the team have not run this distance before, so a real challenge for those in particular.
******
10th May 2015 – Rob Woods will be taking part in the Fred Whitton Challenge which is one of the most popular cycling sportives in the UK and is also famed as being particularly difficult. It consists of a 112 mile sportive around the Lake District, including all the Lakeland passes, one with a 30% gradient which comes at 98 miles.
The very top riders complete the route in just under six hours but eleven hours and over are not uncommon for the average Sportive rider. This is a very tough route and going on rider feedback it is considered the hardest one day ride in the UK.
******
- Annie’s story -
Annie was born healthy and developed normally until about 12 months. Soon after her first birthday, her family became concerned as she was showing no signs of crawling or walking and she wasn't reaching her developmental milestones in other areas too. Annie was referred for physio at the hospital as it appeared she had hypermobility. After further investigations from numerous professionals over a period of a year, she was eventually referred for genetic testing.
On the 4th December 2014 Annie’s family were devastated to learn that Annie had been diagnosed with Rett Syndrome.
Annie's dad Stephen Smart and a family friend Rich Thornewill are running the London Marathon in April 2015 to raise money for Rett UK, who look at researching treatments to hopefully one day provide a cure.
Annie, now nearly 3 years old is a happy and loving little girl who loves to laugh and be around people, but tragically she may never be able to speak or walk. Rett has taken away her freedom and independence before she even had a chance to enjoy it. Please sponsor us and help us to help this amazing little girl.
- A bit about Rett Syndrome -
Rett syndrome is a rare neurological disorder affecting mainly females and very few males. Genetic but not hereditary, it could occur in any family, affecting approximately 1 in 12,000 baby girls born each year.
Rett syndrome is a rare condition that affects the development of the brain. It can cause severe physical and mental disability that begins in early childhood.
Rett syndrome usually goes unnoticed for the first few months of the child's life, parents tend first to become aware of the condition when their child’s development slows. People with Rett Syndrome have profound and multiple physical and communication disabilities and are totally reliant on others for support throughout their lives.
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Organizer
Diane Woods
Organizer