A new treatment from Japan has recently been approved. It is expensive. Ann is the 9th person to try it. It does not cure the disease but can possibly slow down the progression. For two weeks, she will have a needle in her wrist and take the medicine daily. Eventually she will need a port in her chest to accept the infusions which will be in 14 and then 10 day increments.
The financial aspects of this disease can be devastating. Their home must be modified to accommodate a wheel chair and access to a bathroom. Ann's last day of work will have to be December 1st so they will lose her income once the disability runs out. There are numerous medical treatments that run in the thousands - lifts, respirators, harnesses, communication devices. They have 3 children all in high school. Please help if you can. If we all just give a little, it can help one family alot.
DonationsSee top donations
- Tom Toth
- Dana Bergman
- Alan Flory
Organizer and beneficiary
#1 fundraising platform
More people start fundraisers on GoFundMe than on any other platform. Learn more
In the rare case something isn’t right, we will work with you to determine if misuse occurred. Learn more
Expert advice, 24/7
Contact us with your questions and we’ll answer, day or night. Learn more