
Angel John, our baby's homegoing to rest in peace
Donation protected
Hi, I'm Stephanie Orsini, grandmother to Angel John, our little guy whose life we're commemorating. He began his journey with a lot stacked against him, and his parents have decided that it is in his best interest to withhold invasive and excruciatingly paintful treatment that medical professionals have told them would only prolong suffering. This means that the pregnancy is not going to continue and the baby will be leaving us for his new home in heaven. Because of the enormity of his diagnosis, they were led to the decision to honor their little child's life, mourn him respectfully, and say goodbye.
Angel John's bleak prognosis was revealed by sonogram last week and was confirmed just yesterday. His brain, face, and even hands are devastatingly affected. This condition is lethal in cases like our little guy's. He's dying before we get to hold him in our arms. This is a tragic and horrific experience, but one that we are determined to endure with patience, trusting that God has plans to prosper our little one in his heavenly home, and to welcome him to a land where he can meet his great-grandparents, other precious family members, and receive the loving embrace of the God of all Comfort. We know he's going to experience paradise while he waits for us until we can join him.
The process of laying him to rest is going to be heart-wrenching, and as you can imagine, costly. His parents want to focus on their baby right now, and we'd like to make that possible by helping them handle the expenses without forcing them to figure out how to work out that part of this process. Having a baby is already a challenge, but going to a medical clinic and not returning with a child is a crushing thought. While their hearts endure the pain, we can extend the only comfort that we can right now.
Frequently asked questions:
1. Can they have another child in the future? Yes! In Angel John's case, the condition isn't genetic and there is only a 1% chance of it ocurring again in a future pregnancy.
2. What is the condition that the baby has? It is called Trisomy 13. Babies with exactly the combination of mutations that Angel John has tend to be stillborn. If you want more information, we are posting screenshots with many details that you might want to skip. We are not posting images because you can use Google if you want to know more, but it is not recommended.
3. How can I pray for them? We need your prayers, because this is painful. Please ask the Lord to bring peace, focus, and clarity to everyone involved.

Stepson Anthony and Mama Kenzie, as he calls her.
4. Should I drop by or call? At this moment, they want to dedicate themselves to their little family. Anthony is processing this with them, and he is asking for their attention. Next steps will also consume a lot of their focus. So, we would encourage you to send texts with messages such as, "I'm thinking about you and I love you." Less is more at a time like this, but knowing that you care will be a great comfort to them.
5. How about a casserole or a pizza? In their case, there are food allergies in the household that make this kind of thing tricky. So, in addition to the fundraising expenses related to Angel John's sendoff, they would likely appreciate anything else you can add for meals and other incidentals.
6. How are they handling it? Luis and Mackenzie are strong, but both of them have shed some tears. It is hard. Thankfully, the Lord is their strength and they are trusting that the pain will diminish over time. All of you, their support system, are going to be a huge help with getting them through this, so thanks for your thoughts, prayers, and financial support.
PS... They are talented, smart, and hard working individuals, and they won't waste an opportunity to use any additional funds wisely if given the chance. So if you see we've met the goal, feel free to add a few more pennies to the bucket.
More Details about Trisomy 13
This diagnosis is devastating. Sadly, their child isn't at all like the ones in the cute posters regarding this disease. He's got a far more complicated case. There is complete cleft of the lip and palate. There's fusing of the lobes of the brain where they didn't divide adequately. The deformities are almost beyond imagining, but one thing is certain; they love this baby and want what's best for him. That's why we want to support them during this rough period in their lives.

This is not the end. Our little one will wait for us in heaven.

Hope maketh not ashamed... Romans 5:5

Organizer and beneficiary

Linda Stephanie Orsini
Organizer
Ocoee, FL
Mackenzie Agosti
Beneficiary