- A
- J
My name is Andy, a resilient fighter from Georgia, and I’m sharing my story with a heavy heart, hoping to lift some financial burden from my family during one of the toughest fights of my life. Born with craniosynostosis, a condition where my skull fused too early, I underwent late correction surgery that led to hydrocephalus, causing developmental delays—I even failed 3rd grade. My wonderful Mom put her life on hold for 9 years to homeschool me, giving me the foundation to persevere. As a child, I experienced blackouts and pass-outs, but I pushed through, never missing a day of work.
At 25, severe headaches and ICP pressures over 300 mmH₂O (which can blow out the brain stem) led to two craniotomies by Dr. Robert Scheiss. Tragically, he was later convicted of Capital Murder, making it impossible to obtain my medical records or find doctors willing to engage with my complex case. This setback compounded my challenges, but I fought on, getting spinal taps every two weeks while maintaining my job. Emory finally placed a shunt in 2012, but high CSF protein complicated things.
For years, I pushed my body to its limits, battling through pain, seizures, and fatigue to provide for my family. I’ve endured PNES seizures, CTE from repeated head trauma, DAI, mixed dementia (terminal and progressing quickly), and osteodystrophy, all while refusing to give in. Three years ago, a slow-moving shunt infection turned into a hornet’s nest, requiring replacement on August 21, 2025, leaving new scars and a road to recovery. The infection caused extreme inflammation, with CSF protein peaking at 80 mg/dL before dropping to 13 mg/dL on antibiotics, but it’s been a grueling battle.
Today, I’m home but need infusions three times a day for a week, adding to the stress. The deductible is $4,000, and 20% out-of-pocket costs total $8,000, despite meeting some limits. Unemployment from my health, a year-long fight with a former employer over unpaid wages (thanks to Horizon for their help), and a 600-day wait for SSA disability (pending Compassionate Allowances) have left us struggling. This is separate from my mixed dementia, which has made working impossible.
This isn’t just my fight—it’s my family’s. My wife Lindsey and I want to shield our kids, especially Maddie, whom I dream of walking down the aisle. Stress worsens my seizures, and I refuse to leave Lindsey with my bills. I’ve fought life through with faith, pushing my body beyond limits—alert and working through blackouts, enduring taps without complaint—to be here for them. Now, I need help to keep fighting.
Please contribute to cover medical costs, daily needs, and debt relief. Sharing this with your network means the world. Together, we can turn this page.
Love, Andy






