Anastasia's legacy
Donation protected
So some people think we are doing too much...with the move, reno,and most importantly starting a charity in Anastasia's legacy.
a few months ago we noticed Anastasia become very sad. She was depressed. We think she understands what's happening to her even though she can't speak we know she's aware. She's a smart girl.
The amazing Hospice team from the Nook children's hospice helped us out. Kate their amazing palliative care nurse sat us down and advocated for our little girl. She says with older children and teens who know what's going on, they have a different technique. Those kids get depressed, and the main thing that affects them is the idea that they didn't change the world in their short time on earth. It feels like a failure to them. Their short lives have so little to show for them it hurts their hearts to think of having to say goodbye so soon.
That is when we taught Anastasia the meaning of the word legacy. When anastasia would play RPDR (rupaul's drag race) she would always quote one line… lipsync for your legacy from the all stars version of the show.
She smiled the biggest smile we had seen in months as we explained what Hope House Hazells Charity will be. Her eyes lit up as we explained how every year we will hold a party in her honour around her birthday. She held my hand so tight when I explained how we would plant a million cherry and fruit trees so that every year, for her spring time birthday, they would burst into bloom celebrating with us.
Terminally ill children need to know their life has had purpose. And no matter how many times you say your proud or love them, they need to know that they will make a wider mark on their beautiful and short stay in this world.
The thing Anastasia was most passionate about in the world was an intensity for fighting for those who can't fight for themselves. At the age of 3 we taught her to stand up tall, hands on hips, look the 8 year old bullies in the eyes and say " Hey! Go pick on someone your own size!" The kids had been bullying her but more importantly her friends who she loves deeply The next day…
"Mummy mummy mummy!!! I did it I did it it worked!!!!I told them to "Go pick on someone their own size!!!" She was so proud of herself. She said they didn't know what to say and ran away embarrassed that a nursery student told them off. I couldn't be more proud. And so we will fight. For disabled children, young people and their families.
We will stand up to unfair legislation, schools and communities who aren't helping their most vulnerable children. We will help teach them how to balance their children's special needs with the rest of their family's needs. Eventually we want to hands on help these families learn how to be the best family they can be. Because if there's something we have learned, the only way to parent disabled children is with healthy, and appropriate levels of support.
So why did we do all this at once?
To see that Anastasia smile again and again…
And know that she will live forever through her legacy.
Hopehousehazells.com visit our website
a few months ago we noticed Anastasia become very sad. She was depressed. We think she understands what's happening to her even though she can't speak we know she's aware. She's a smart girl.
The amazing Hospice team from the Nook children's hospice helped us out. Kate their amazing palliative care nurse sat us down and advocated for our little girl. She says with older children and teens who know what's going on, they have a different technique. Those kids get depressed, and the main thing that affects them is the idea that they didn't change the world in their short time on earth. It feels like a failure to them. Their short lives have so little to show for them it hurts their hearts to think of having to say goodbye so soon.
That is when we taught Anastasia the meaning of the word legacy. When anastasia would play RPDR (rupaul's drag race) she would always quote one line… lipsync for your legacy from the all stars version of the show.
She smiled the biggest smile we had seen in months as we explained what Hope House Hazells Charity will be. Her eyes lit up as we explained how every year we will hold a party in her honour around her birthday. She held my hand so tight when I explained how we would plant a million cherry and fruit trees so that every year, for her spring time birthday, they would burst into bloom celebrating with us.
Terminally ill children need to know their life has had purpose. And no matter how many times you say your proud or love them, they need to know that they will make a wider mark on their beautiful and short stay in this world.
The thing Anastasia was most passionate about in the world was an intensity for fighting for those who can't fight for themselves. At the age of 3 we taught her to stand up tall, hands on hips, look the 8 year old bullies in the eyes and say " Hey! Go pick on someone your own size!" The kids had been bullying her but more importantly her friends who she loves deeply The next day…
"Mummy mummy mummy!!! I did it I did it it worked!!!!I told them to "Go pick on someone their own size!!!" She was so proud of herself. She said they didn't know what to say and ran away embarrassed that a nursery student told them off. I couldn't be more proud. And so we will fight. For disabled children, young people and their families.
We will stand up to unfair legislation, schools and communities who aren't helping their most vulnerable children. We will help teach them how to balance their children's special needs with the rest of their family's needs. Eventually we want to hands on help these families learn how to be the best family they can be. Because if there's something we have learned, the only way to parent disabled children is with healthy, and appropriate levels of support.
So why did we do all this at once?
To see that Anastasia smile again and again…
And know that she will live forever through her legacy.
Hopehousehazells.com visit our website
Fundraising team (2)
Alexandra Hazell
Organizer
England
James Hazell
Team member
