Update 11/3/2024***

Thanking everyone that helped us meet over half of our goal. These funds are important and will assist with the financial burden caused by me not being able to work while caring for the girls.

Analynn is being admitted to the hospital today and will have to stay there until her albumin level has increased and she has shed all the liquid she's retained. Please keep her and Laylani in your thoughts and prayers.

If you can please share this post, it would help us reach our goal and provide some peace of mind during such a chaotic time.

Thank you all.

Thankfully Laylani was assessed and Nicklaus and they didn't find anything wrong with her back. She was able to complete infusion and return home.

Update 10/20/2023***

Good morning everyone.

Wanted to provide an update on the girls. Their protein remains high and I'm currently with Laylani at Nicklaus fo her weekly infusion. This morning was quite the scare. Around 7 am, Laylani was using the restroom and I could hear her crying and asking for help. It appears she might have had a muscle spasm or pinched nerve. The nephrologist would like to have her scanned to ensure there are no fracturas. This is a potential side affect of her daily intake of prednisone. As soon as the nephrologist passes by and let's us know what he wants to do, ill provide an update.

Please keep them both in your prayers and we are beyond grateful for all of you.

Love,

Anivette

*********************

Good morning to all of you who have taken interest in Analynn & Laylanis Nephrotic Syndrome Fight.

I wanted to thank each one of you so much for caring and for sending your generous support. I can't thank you enough and there are no words to express my gratitude to each and every one of you. With your contributions, we will be able to purchase medical supplies not covered through insurance. Purchase foods that are essential to meet their health needs. The contributions will also assist in commuting back and forth to hospitals and doctors visits. Lastly, we will purchase them clothing and shoes they need so much due to changes in weight from taking steroids daily.

Dr. Ramirez, who is the girls nephrologist and works at Nicklaus just called and provided an update on the girls lab work. Currently, they both have proteinuria. This indicates both kidney's are not functioning well and treatment must continue.

Laylani will resume her weekly infusions at the hospital and continue taking her daily medication.

Analynn will increase on medication cellcept, which is given to both girls as a Boost to their kidney function. Cellcept is mostly givento Renal transplant patients, however, studíes have proven this medication is effective in decreasing relapses with kidney disease. We all know steroids is very potent and many unwanted side affects. So our goal is to when them completely off. Please keep the girls in your thoughts and prayers.

PS. Seeing how im not fluent in spanish, please give me time to translate.

With all my love,

Anivette R. Morejon

Hi, my name is Anivette. I'm a proud mother of four amazing girls. My oldest is now a mommy of a two year old son. My middle child is 14 and a straight A student in a Magnet Program. My twins, Analynn & Laylani are 11. They were preemies at birth, weighing 2 pounds each. I call them, my miracle babies. The first three months were very difficult as they were faced with so many challenges. Heart murmurs, blood transfusións, spinal taps, feeding tubes and the incubators. Thankfully, they beat the odds! Thanks to God and all the staff at Joe Dimaggio, they were released and after therapy, caught up to all their milestones.

One day, Laylani woke up swollen and I immediately presumed it was allergies. Little did I know, she would be diagnosed with Nephrotic Syndrome. This is a rare form of kidney disease, one which i had never heard of before. A couple years after, her sister Analynn was also diagnosed with nephrotic syndrome and it's been the most difficult challenge.

Both girls have relapsed repeatedly and been hospitalized at the same time on múltiple ocasions. Laylani has needed extensive treatment such as lasix, albumin treatments, infusions and many hospitalizations. Analynn has also had to deal with the same complications and overall edema. This is a really tough time as I was laid off from my job as a result of missing work to be with my daughter's at the hospital. We have a long road ahead of us but im grateful that they are so strong and fighting every step of the way.

Im creating this gofundme as a means to get by and pay some backed up bills and have financial assistance for basic human needs.

Any contribution, is greatly appreciated and I thank you for listening to our story. If you can, please share this page.

Sincerely,

Anivette Morejon