I have always had a hard time asking for any kind of help, but here I am after swallowing my pride because I am dead broke and can no longer pay for my own medical care. Admitting that I can't do this alone makes it harder.
In November 2016 I was diagnosed with a very rare cranial nerve disorder - Sluder's Neuralgia/Trigeminal Neuralgia along with a slew of other related diagnoses (chronic status migranosis, chronic myalgia, PTSD, Autoimmune disease, inflammatory bowel disease, tinnitus, Celiac's Disease, occipital neuralgia and so on) that have taken over my entire life.
In short, I am in pain all day, every day with no real solution yet. I just spent Christmas in the hospital, while my team of doctors and specialists tried to break a 6 week full body migraine. I basically can not function as a normal adult. My quality of life is null and void. I miss my friends, family, and my career. I spend most of my days in a dark room trying to escape the pain.
I applied for social security disability and was denied.
I lost my full-time job that I loved over a year ago due to my illness and because I was "mutually terminated" I do not qualify for unemployment.
I have had almost zero income for over a year and have finally depleted every other monetary resource I had.
My doctors (some of the best in the state) now want to send me to Mayo Clinic in Minnesotta as a complex medical case to get the best diagnostics, testing, treatments, and care that I can, because I have exhausted my treatment options at my local hospital, Thomas Jefferson Hospital and UPENN Hospital.
However, I can not readily afford this.
Your gracious donation will help me pay for:
Mayo Clinic, travel expenses for myself and my parents (who are my primary caretakers), surgery (which I was just told I needed again this past Monday) various ongoing and new treatments, medications, supplements, medical devices for at-home use, medical tests, physical therapy, hospital stays, and any other medical- related expense.
Your contribution will also help me hire an attorney so I can hopefully get disability or financial assistance. Even If I do get approved for disability, the wait time for any type of payout is 24 months.
The truth is that I am scared, nervous, and mostly sad. I have been trying very hard to stay positive, keep my head up, and not spiral into complete depression. In fact, having to start this fund is extremely hard for me, but desperate times call for desperate measures.
Honestly, I just want my life back. I miss being able to enjoy the things I love, being able to sit in a movie theater, socializing with friends, driving, my career as an entertainment writer - just everyday things that I can't do now that I used to take for granted. I need some sort of sign that there is a light at the end of this seemingly never-ending tunnel. I am struggling big time here, but I refuse to give up or give in.
Even the smallest donation or a simple share on social media will be so greatly appreciated by myself and my family.
I can't thank you enough.
- Amy Giardiniere
If you have any questions at all, please reach out to me.