Amy’s battle against Cystic Fibrosis
Donation protected
My family is trying to raise funds so my Mum Kerry can spend a few months in Queensland to care for her daughter, my sister, Amy.
Amy has Cystic Fibrosis and was recently discharged from hospital for comfort care, she is palliative and her Mum hasn't been able to see her since March due to Cover-19 restrictions.
Mum or Amy have never reached out for help like this before but thankfully they have both agreed to let me make this page. To me this just highlights the desperation of the situation we find ourselves in.
We would very much like to ease some of Mums burdens by raising funds to cover her rent and bills here in Sydney while she is spending this precious time with Amy. With current border closures we have arranged for Amy to come south to Tweed Heads so Mum can care for her there. Any funds raised would help greatly towards covering the costs of care and accommodation.
Here are a few words from Mum:
Amy was a much longed for baby and after 3 years all our wishes came true when we were blessed by the birth of our beautiful, healthy baby girl. At 6 weeks of age I received that much dreaded phone call that Amy's heel prick test results returned positive for Cystic Fibrosis. From that very moment onwards our lives as we knew them changed forever. Our precious little Amy has endured a life of constant extended hospital admissions to Westmead Children's Hospital, Major Sydney and Brisbane hospitals and sadly Campbelltown paediatric ward became our second home. Every other day we had a hospital appointment, clinic visit or test somewhere.
Life was very hard.
Harder still 5 years later when my husband and I divorced. Thankfully he remained an important fixture in Amy and her younger brother Jarrod's lives.
So there I was a single Mum, struggling to make ends meet but I must have done something right because I raised a beautiful, determined and ambitious woman. My courageous Amy studied interior design, held full time employment and also started her own successful business. All this amidst hospital appointments, admissions and days that most of us would surely just struggle to get out of bed.
She is a true Champion.
I have worked in health for the past 17 years. I currently work as patient transport officer, transporting patients with various illnesses and conditions who are at varying stages of their lives. Some days it is very tough offering care and sympathy to your patients while inside you are broken and your heart is simply aching to be with your seriously ill daughter.
Amy found love in Brad 8 years ago, they have planned to marry twice but both times this has been postponed due to Amy's failing health. Brads works for the Australian forces and at times this role has taken him away from home but he has always given our beautiful girl 100% support.
Brad was posted to Queensland in January 2019 where they purchased their first home with intentions of renovating. This never happened. Amy became severely unwell shortly after the move to Queensland and was soon informed that she required a third double lung transplant. Her first transplant was performed when she was just 21 and lasted 5 years before rejection, her second lasted 2 years and here we are again praying for a miracle and life changing gift from the beautiful soul of an organ donor.
I am still working full time and prior to Covid, any days off I would fly to Brisbane to visit and help Brad care for Amy as he gives her full time care. They have no assistance and know very few people in Queensland.
Heartbreakingly, Amy no longer meets the criteria for the heart lung transplant she has been awaiting and we were all praying for. Due to Covid 19 restrictions I have not been able to hold or see my precious girl for 7 months. No parent should ever have to endure the heartache of their child being palliative let alone not be able to comfort and support them. That is just soul crushing for all.
Amy is now 31 years of age, she is loved so very dearly and will always be my beautiful Missy Moo.
I hope after reading Amy's story that you will consider donating any amount to help our family in making her as comfortable as possible. Time and the ever-changing restrictions of Covid 19 are against us but any help will be so greatly appreciated.
THANK YOU
Amy has Cystic Fibrosis and was recently discharged from hospital for comfort care, she is palliative and her Mum hasn't been able to see her since March due to Cover-19 restrictions.
Mum or Amy have never reached out for help like this before but thankfully they have both agreed to let me make this page. To me this just highlights the desperation of the situation we find ourselves in.
We would very much like to ease some of Mums burdens by raising funds to cover her rent and bills here in Sydney while she is spending this precious time with Amy. With current border closures we have arranged for Amy to come south to Tweed Heads so Mum can care for her there. Any funds raised would help greatly towards covering the costs of care and accommodation.
Here are a few words from Mum:
Amy was a much longed for baby and after 3 years all our wishes came true when we were blessed by the birth of our beautiful, healthy baby girl. At 6 weeks of age I received that much dreaded phone call that Amy's heel prick test results returned positive for Cystic Fibrosis. From that very moment onwards our lives as we knew them changed forever. Our precious little Amy has endured a life of constant extended hospital admissions to Westmead Children's Hospital, Major Sydney and Brisbane hospitals and sadly Campbelltown paediatric ward became our second home. Every other day we had a hospital appointment, clinic visit or test somewhere.
Life was very hard.
Harder still 5 years later when my husband and I divorced. Thankfully he remained an important fixture in Amy and her younger brother Jarrod's lives.
So there I was a single Mum, struggling to make ends meet but I must have done something right because I raised a beautiful, determined and ambitious woman. My courageous Amy studied interior design, held full time employment and also started her own successful business. All this amidst hospital appointments, admissions and days that most of us would surely just struggle to get out of bed.
She is a true Champion.
I have worked in health for the past 17 years. I currently work as patient transport officer, transporting patients with various illnesses and conditions who are at varying stages of their lives. Some days it is very tough offering care and sympathy to your patients while inside you are broken and your heart is simply aching to be with your seriously ill daughter.
Amy found love in Brad 8 years ago, they have planned to marry twice but both times this has been postponed due to Amy's failing health. Brads works for the Australian forces and at times this role has taken him away from home but he has always given our beautiful girl 100% support.
Brad was posted to Queensland in January 2019 where they purchased their first home with intentions of renovating. This never happened. Amy became severely unwell shortly after the move to Queensland and was soon informed that she required a third double lung transplant. Her first transplant was performed when she was just 21 and lasted 5 years before rejection, her second lasted 2 years and here we are again praying for a miracle and life changing gift from the beautiful soul of an organ donor.
I am still working full time and prior to Covid, any days off I would fly to Brisbane to visit and help Brad care for Amy as he gives her full time care. They have no assistance and know very few people in Queensland.
Heartbreakingly, Amy no longer meets the criteria for the heart lung transplant she has been awaiting and we were all praying for. Due to Covid 19 restrictions I have not been able to hold or see my precious girl for 7 months. No parent should ever have to endure the heartache of their child being palliative let alone not be able to comfort and support them. That is just soul crushing for all.
Amy is now 31 years of age, she is loved so very dearly and will always be my beautiful Missy Moo.
I hope after reading Amy's story that you will consider donating any amount to help our family in making her as comfortable as possible. Time and the ever-changing restrictions of Covid 19 are against us but any help will be so greatly appreciated.
THANK YOU
Organizer
Jarrod Grieve
Organizer