Amira USA adventures

Where do i start!

This is my beautiful niece amira-mae!

She is 2 years old.

She has been diagnosed with a rare condition called Jordan syndrome or ppp2r5d which is a neurodevelopment disorder

From 3 weeks old, she had her first seizure which resulted in many hospital admissions of which she was given different diagnosis such as floppy larynz and reflux.

After many surgical procedures and treatments the hospital finally ruled out floppy larynx and reflux, and done further research,blood test which came back as this rare genetic condition.

In the uk there is no specialists for amira. She has seizure daily and some which has resulted in her being hospitalised and even put into a induced coma.

Amira-mae and her family have been giving an opportunity to go to the USA to see a specialist for jordon syndrome. Along with that her family can meet other family who are living with the same condition.

We are doing this go fund me to help the family get there.

As you can imagine this is a once in a life time opportunity for the family to learn more about Amiras condition and any new medications that may help her.

Amira is a happy and determined girl and with the love and support of her whole family has exceeded doctor's expectations.

Thank you all for yours support