this is Maddie she has a very rare genetic disorder called white sutton syndrome with affects her in many different ways she has global development disorder hypotonia suspected autism she has eye sight problems muscle problems breathing problems and many other things she is 4 and all it’s been is tests after tests and now it’s starting to be operations the uk have no clue about this syndrome and they could only tell me what they have googled and told us if we want more information we have to go to America to the white Sutton syndrome conference so that’s what we will eventually be doing I am doing everything I can to raise the funds like selling cakes and putting all the profit into the go fund me I really didn’t want to set one up at first but everyone has shown me I don’t need to do it alone here is the go fund me I don’t want to pressure anyone into donating so please only donate if you can and thank you for letting us spread awareness about this rare disorder