Amaya Kayla Maldonado and her family

Please read to the end...

Hello, my name is Barbara Diaz Romo, Godmother, Tía of Amaya Kayla Maldonado.

I will be sharing with you a brief view of Amaya's 19 year journey...

Our Sweet Beautiful Angelic Amaya Kayla Maldonado was born May 30th, 2003. She weighed 3 lbs, 13 onces, 15 inches long and was a ray of sunshine. She was born to my sister Alice Diaz Maldonado and brother in law "Lupe" Maldonado both junior high school sweethearts. Amaya became Nathan's forever and only little sister whom We ALL Cherished with every breath she took.

At the age of 6 months Amaya was diagnosed with 18 chromosome P-arm Right deletion which is a very rare disease; 1 out of 10,000 births, inwhich many children do not survive 1 or 2 years of age. This syndrome includes short stature, variable degrees of no muscles, no language, craniofacial malformations and additional physical abnormalities.

One of her challenges of life was to be fed through a feeding tube, in which she received her regular gevity formula and also the source used to administer her daily and ritual medications given by the medical field and parents. When her older brother Nathan was ready and able, he too administered, assisting his sister to thrive. She was on oxygen 24 hours a day, 7 days a week, along with various special equipment and monitors used at home.

Amaya had frequent set and non set appointments, and many emergency hospital visits. She had many nurses and a team of doctors studying and assisting her care. They were always flustered, overwhelmed and/or in awe when Amaya would defeat or confirm their theories. At one point, Dr's shared with her parents that she developed severe pulmonary hypertension in her lungs which increased throughout the year of 2013. Towards the end of her 12 years of age, her Dr's asked parents to be prepared for the worst as she was not going to celebrate her 14th birthday. Once again, Amaya triumphed as she always had.

Amaya was a beautiful soul, an Angel, a gift from God not only to her parents, older brother; but to ALL she crossed paths with. Her unconditional love for her family, her own life was unexplainable. She was a true hero, a valiant champion with invisible medals, badges, certificates, trophies, plaques and ribbons that surpasses all who I know put together which her family can only see. Repeating: She defeated many and all odds inspiring the medical field to continue their science and give light to other 18 chromosone parents not to give up. Reminding us that a child can add and give encouragement, courage and also give it "our" all as she always did. Amaya simply enlighten someone and made a room brighter with her smile even when "those" starred. Nonetheless, she gave them hope. She gave her Dr's guidance, aspirations; belief that their findings can help others as much possible since Amaya gave them continuous aray of different results than what they expected. Her own "painless" ways of survival gave the medical field a broader look, rays of light as she is the longest survivor of this specific particular rare disease.

Some of her: " Amaya Never will"...

Amaya fulfilled her purpose, her reason to breathe amongst all and to be. Her vessel and soul was given to the right family as we all learned in different ways about how sweet, short, spontaneous and the unexpected can occur in life at any given time. Everyone's life changed in an instinct when she was born, when she was diagnosed and just currently of her passing. Nonetheless, her willingness to fight to thrive, to live, to teach, to love, to care, to guide and just belong is unexplainable to understand how this sweet innocent little soul was able to do for so many in such a short time.

If you didn't get a chance to meet my beautiful goddaughter, Amaya Kayla Maldonado personally, I hope that this 19 year briefing gives you some light to say you knew of her, a gift from God whom was loved by many

Embrace the peace, love and comfort which approaches and roll with the punches when defiance makes an appearance such as Amaya did.

To my Goddaughter, my niece, our Beautiful Angel Amaya Kayla Maldonado,

May you rest in eternal peace by the right hand side of our Father. May your family and all you've touched find peace, comfort and understanding simply by knowing you lived a life of purpose and to the fullest possible. You are no longer in pain so rejoice Beautiful Amaya. Thank you for the additional life lessons. Rest in peace our Angel, our bold Warrior, our Teacher...till we meet again

RIP Amaya Kayla Maldonado

May 30th, 2003 - November 14th, 2022

Our hearts are broken....

Amaya will be forever missed and forever be embedded in our hearts. On behalf of her parents, they are asking for time to grieve and the same time and Maldonado family sincerely Thank You all in advance for any assistance, no amount is to small.

Donations will be used towards medical expenses, memorial services and unexpected expenses which may arise during this time. Thank you again and God bless you All.

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