
Amanda’s paralysis,wheelchair & medical bills
Going from figure skating to needing a wheelchair is hard.This fundraiser is for medical costs.I spent nearly 2 months in the hospital forsevere sciatic & lumbar plexus nerve damage -I lost both sensory and motor nerve function and use of my left leg . I am raising money for a Per4Max wheelchair so I can continue to be an athlete and for the physical therapy needed to recover since I am paralyzed in my leg .
On October 17 I was doing physical therapy & felt tired after, so I went to take a nap-I never woke up from that nap paramedics were in my room they tried to get me to stand . I tried I couldn’t feel my leg fell—put into an ambulance & hospital I don’t remember any of that but I do remember waking up in the ER & with my history of 11+ surgeries for my left leg they decided to do an MRI. I woke up next admitted to the hospital & confused but they said my CPK level was over 50,000 with severe Rhabdomyelosis & infection i would be there awhile & they explained they needed to use anesthesia for my MRIs or my spine and hips and CTs. I still couldn’t feel my left leg and I have had many surgeries since I was born without a left ACL and in a revision I got a severe infection . The last 5 1/2 years have been nonstop surgery but nonstop comeback too . We thought I would be getting my next surgery to get a ligament and then I could be back to sports . My weeks in the hospital were hard having zero feeling in my leg and unable to move it —and being tethered to a PICC line which was inserted to give me 5 different antibiotics—I kept smiling and fighting & the drs hoped that once the rhabdomyelosis cleared and infection pressing on my nerves etc I would be able to move my leg —but by Thanksgiving I still couldn’t even move my foot . I lost all feeling below the knee and it’s replaced by awful nerve pain requiring around the clock pain medicine. After almost 2 months in the hospital and 30(?) scans later I don’t know the amount but I had 7 MRIs in one day and 16 scans in the first 2 weeks but nothing showed that I was improving. Every single doctor said the same thing though —it was TRAGIC what happened to me . I guess that my sciatic and lumbar plexus nerves were damaged and they may come back but it can take years if they do , it isn’t a good sign I haven’t regained any function at all though and my pain is severe .
After almost 2 months I went home but I can’t get around -I’m not able to use crutches anymore since I can’t lift my leg verymuch & I have Ehlers Daniels Syndrome ( i have vascular genes and the hyper mobile diagnosed this year at Mayo Clinic). My family has maxed out my physical therapy benefits and we pay around $600 a week for me to attend 3 sessions when I should really go more.
I may not regain the function or feeling inmy leg but I’m determined I will not let that stop me from being the girl who has always made a comeback.
Being born with no ACL ligament they didn’t think I’d do many sports but I competed at a National level in figure skating ⛸ and continued to skate my whole life .I defied the odds . And I will again . I hope that finances will not be the limitation to my recovery . Right now my pain is severe and I cannot havd my leg unsupported or I am in intense pain . And there’s a lot of work involved with insurance in obtaining the medical devices needed to recover . For example I had a surgery in January and I used all my physical therapy visits -60- but I was able to walk again . This lastillness has left me paralyzed and we don’tget any additional visits it’s called a “hardmax”.
if you read this thank you and I hope you will consider contributing to my wheelchair so I can get a lightweight one and adaptive equipment. I hope you will support me so that I can do more physical therapy . And I hope that you will donate so thatI can get up and moving since currently my days are spent totally in a bed when I’m not in physical therapy . I am an artist and my dream is to be a pediatric art therapist . We will also need funds to travel to some other Neuro surgery centers for evaluation- Colombia, John Hopkins, & UCSF
I may lose my leg entirely which we hope I do not and your contributions will help that even if I do I am strong and mobile ani can still attain my goal of becoming an art therapist —but first I need to focus 100% on my healing for now . And in the past 5 years we have spent so much on my leg that it’s making it very difficult.
no one expects to become paralyzed
but everyone should have the chance to
still have their best life
100% of these funds will he used for medical costs .
thank you sincerely,
Amanda